{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"submitter":["Campbell-Salome G"],"funding":["National Heart, Lung, and Blood Institute","NHLBI NIH HHS"],"pagination":["340"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC10074725"],"repository":["biostudies-literature"],"omics_type":["Unknown"],"volume":["23(1)"],"pubmed_abstract":["<h4>Background</h4>This project aimed to optimize communication strategies to support family communication about familial hypercholesterolemia (FH) and improve cascade testing uptake among at-risk relatives. Individuals and families with FH provided feedback on multiple strategies including: a family letter, digital tools, and direct contact.<h4>Methods</h4>Feedback from participants was collected via dyadic interviews (n = 11) and surveys (n = 98) on communication strategies and their proposed implementation to improve cascade testing uptake. We conducted a thematic analysis to identify how to optimize each strategy. We categorized optimizations and their implementation within the project's healthcare system using a Traffic Light approach.<h4>Results</h4>Thematic analysis resulted in four distinct suggested optimizations for each communication strategy and seven suggested optimizations that were suitable across all strategies. Four suggestions for developing a comprehensive cascade testing program, which would offer all optimized communication strategies also emerged. All optimized suggestions coded green (n = 21) were incorporated. Suggestions coded yellow (n = 12) were partially incorporated. Only two suggestions were coded red and could not be incorporated.<h4>Conclusions</h4>This project demonstrates how to collect and analyze stakeholder feedback for program design. We identified feasible suggested optimizations, resulting in communication strategies that are patient-informed and patient-centered. Optimized strategies were implemented in a comprehensive cascade testing program."],"journal":["BMC health services research"],"pubmed_title":["Optimizing communication strategies and designing a comprehensive program to facilitate cascade testing for familial hypercholesterolemia."],"pmcid":["PMC10074725"],"funding_grant_id":["R01HL148246"],"pubmed_authors":["Sturm AC","Simmons E","Walters NL","Rahm AK","Ladd IG","Wilemon K","Jones LK","Schmidlen TJ","Brangan A","Ahmed CD","McGowan MP","Morgan KM","McMinn MN","Schwartz MLB","Campbell-Salome G","Tricou E"],"additional_accession":[]},"is_claimable":false,"name":"Optimizing communication strategies and designing a comprehensive program to facilitate cascade testing for familial hypercholesterolemia.","description":"<h4>Background</h4>This project aimed to optimize communication strategies to support family communication about familial hypercholesterolemia (FH) and improve cascade testing uptake among at-risk relatives. Individuals and families with FH provided feedback on multiple strategies including: a family letter, digital tools, and direct contact.<h4>Methods</h4>Feedback from participants was collected via dyadic interviews (n = 11) and surveys (n = 98) on communication strategies and their proposed implementation to improve cascade testing uptake. We conducted a thematic analysis to identify how to optimize each strategy. We categorized optimizations and their implementation within the project's healthcare system using a Traffic Light approach.<h4>Results</h4>Thematic analysis resulted in four distinct suggested optimizations for each communication strategy and seven suggested optimizations that were suitable across all strategies. Four suggestions for developing a comprehensive cascade testing program, which would offer all optimized communication strategies also emerged. All optimized suggestions coded green (n = 21) were incorporated. Suggestions coded yellow (n = 12) were partially incorporated. Only two suggestions were coded red and could not be incorporated.<h4>Conclusions</h4>This project demonstrates how to collect and analyze stakeholder feedback for program design. We identified feasible suggested optimizations, resulting in communication strategies that are patient-informed and patient-centered. Optimized strategies were implemented in a comprehensive cascade testing program.","dates":{"release":"2023-01-01T00:00:00Z","publication":"2023 Apr","modification":"2024-11-15T02:38:56.76Z","creation":"2024-11-15T02:38:56.76Z"},"accession":"S-EPMC10074725","cross_references":{"pubmed":["37020233"],"doi":["10.1186/s12913-023-09304-y"]}}