{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"omics_type":["Unknown"],"volume":["18(1)"],"submitter":["Mund M"],"funding":["Universitätsklinikum Hamburg-Eppendorf (UKE)"],"pubmed_abstract":["<h4>Background</h4>Centers for rare diseases serve as contact points for patients with complex, often undiagnosed complaints and persistent somatic symptoms of heterogeneous origin. Little is known about psychological distress of patients consulting these centers.<h4>Objectives</h4>To better understand psychological distress of adult patients presenting at a center for rare diseases by determining the proportion of patients screening positive for depressive, anxiety, and somatic symptom disorders (SSD) and to identify factors associated with increased psychopathology.<h4>Methods</h4>Cross-sectional data from the routine care registry of the Martin Zeitz Center for Rare Diseases (MZCSE) at the University Medical Center Hamburg-Eppendorf in Germany was retrieved and analyzed. We included all"],"journal":["Orphanet journal of rare diseases"],"pagination":["82"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC10103043"],"repository":["biostudies-literature"],"pubmed_title":["Psychological distress of adult patients consulting a center for rare and undiagnosed diseases: a cross-sectional study."],"pmcid":["PMC10103043"],"pubmed_authors":["Mund M","Kubisch C","Schramm C","Rillig F","Lowe B","Herget T","Weiler-Normann C","Uhlenbusch N"],"additional_accession":[]},"is_claimable":false,"name":"Psychological distress of adult patients consulting a center for rare and undiagnosed diseases: a cross-sectional study.","description":"<h4>Background</h4>Centers for rare diseases serve as contact points for patients with complex, often undiagnosed complaints and persistent somatic symptoms of heterogeneous origin. Little is known about psychological distress of patients consulting these centers.<h4>Objectives</h4>To better understand psychological distress of adult patients presenting at a center for rare diseases by determining the proportion of patients screening positive for depressive, anxiety, and somatic symptom disorders (SSD) and to identify factors associated with increased psychopathology.<h4>Methods</h4>Cross-sectional data from the routine care registry of the Martin Zeitz Center for Rare Diseases (MZCSE) at the University Medical Center Hamburg-Eppendorf in Germany was retrieved and analyzed. We included all","dates":{"release":"2023-01-01T00:00:00Z","publication":"2023 Apr","modification":"2026-06-05T06:49:18.677Z","creation":"2025-02-19T03:59:57.009Z"},"accession":"S-EPMC10103043","cross_references":{"pubmed":["37060005"],"doi":["10.1186/s13023-023-02669-7"]}}