{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"submitter":["Uthappa DM"],"funding":["NICHD NIH HHS","NCATS NIH HHS","NIMHD NIH HHS","NIAAA NIH HHS"],"pagination":["e2022060352N"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC10312277"],"repository":["biostudies-literature"],"omics_type":["Unknown"],"volume":["152(Suppl 1)"],"pubmed_abstract":["<h4>Objectives</h4>To provide recommendations for future common data element (CDE) development and collection that increases community partnership, harmonizes data interpretation, and continues to reduce barriers of mistrust between researchers and underserved communities.<h4>Methods</h4>We conducted a cross-sectional qualitative and quantitative evaluation of mandatory CDE collection among Rapid Acceleration of Diagnostics-Underserved Populations Return to School project teams with various priority populations and geographic locations in the United States to: (1) compare racial and ethnic representativeness of participants completing CDE questions relative to participants enrolled in project-level testing initiatives and (2) identify the amount of missing CDE data by CDE domain. Additiona"],"journal":["Pediatrics"],"pubmed_title":["Common Data Element Collection in Underserved School Communities: Challenges and Recommendations."],"pmcid":["PMC10312277"],"funding_grant_id":["UL1 TR000042","P2C HD042854","OT2 HD107559","OT2 HD107553","P50 HD103525","HHSN275201000003C","OT2 HD107543","U24 TR001608","OT2 HD108103","OT2 HD108112","OT2 HD108101","OT2 HD107557","OT2 HD107558","OT2 HD107555","U24 MD016258","OT2 HD107556","OT2 HD108105","HHSN275201000003I","OT2 HD108111","OT2 HD108110","OT2 HD108097"],"pubmed_authors":["Zandi K","Coller RJ","Wu YP","Okihiro M","McDaniels-Davidson C","DeMuri GP","Pulgaron ER","Lee RE","Goldman JL","Gurnett CA","Gwynn L","Johnson SB","Potts JM","Schuster JE","Oren E","Zimmerman KO","Corbett A","Allison-Burbank JD","Walsh T","Kiene SM","Dozier A","Mann TK","D'Agostino EM","Foxe JJ","Kemp S","Stump TK","Holden-Wiltse J","Uthappa DM","Haroz EE","Watterson T","Spallina S","Inkelas M","Anderson WB","Newland JG","Mast DK","Benjamin DK"],"additional_accession":[]},"is_claimable":false,"name":"Common Data Element Collection in Underserved School Communities: Challenges and Recommendations.","description":"<h4>Objectives</h4>To provide recommendations for future common data element (CDE) development and collection that increases community partnership, harmonizes data interpretation, and continues to reduce barriers of mistrust between researchers and underserved communities.<h4>Methods</h4>We conducted a cross-sectional qualitative and quantitative evaluation of mandatory CDE collection among Rapid Acceleration of Diagnostics-Underserved Populations Return to School project teams with various priority populations and geographic locations in the United States to: (1) compare racial and ethnic representativeness of participants completing CDE questions relative to participants enrolled in project-level testing initiatives and (2) identify the amount of missing CDE data by CDE domain. Additiona","dates":{"release":"2023-01-01T00:00:00Z","publication":"2023 Jul","modification":"2026-07-14T20:59:54.925Z","creation":"2026-06-24T03:06:28.405Z"},"accession":"S-EPMC10312277","cross_references":{"pubmed":["37394503"],"doi":["10.1542/peds.2022-060352N","10.1542/peds.2022-060352n"]}}