{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"omics_type":["Unknown"],"volume":["18(12)"],"submitter":["Wang KE"],"pubmed_abstract":["The purpose of this study was to analyze secondary resiliency and user experience outcomes from a novel, 8-week website-based mind-body intervention (NF-Web) for adults (18+) with neurofibromatosis (NF1, NF2, and schwannomatosis), a genetic, neurocutaneous disorder characterized by nerve sheath tumors of the central and peripheral nervous system. The study design was a secondary data analysis of a single-arm, early feasibility pilot study (September 2020-May 2021) for adults with NF (N = 28). Across participants, the mean age was 46 (SD = 13.67) and included 22 females and 6 males. Participants completed baseline and posttest assessments (t-tests), as well as exit interviews (exploratory rapid data analysis). Results demonstrated that participation was associated with pre-to-post improveme"],"journal":["PloS one"],"pagination":["e0295546"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC10735002"],"repository":["biostudies-literature"],"pubmed_title":["Resiliency outcomes after participation in an asynchronous web-based platform for adults with neurofibromatosis: The NF-Web study."],"pmcid":["PMC10735002"],"pubmed_authors":["Lester EG","Wang KE","Vranceanu AM"],"additional_accession":[]},"is_claimable":false,"name":"Resiliency outcomes after participation in an asynchronous web-based platform for adults with neurofibromatosis: The NF-Web study.","description":"The purpose of this study was to analyze secondary resiliency and user experience outcomes from a novel, 8-week website-based mind-body intervention (NF-Web) for adults (18+) with neurofibromatosis (NF1, NF2, and schwannomatosis), a genetic, neurocutaneous disorder characterized by nerve sheath tumors of the central and peripheral nervous system. The study design was a secondary data analysis of a single-arm, early feasibility pilot study (September 2020-May 2021) for adults with NF (N = 28). Across participants, the mean age was 46 (SD = 13.67) and included 22 females and 6 males. Participants completed baseline and posttest assessments (t-tests), as well as exit interviews (exploratory rapid data analysis). Results demonstrated that participation was associated with pre-to-post improveme","dates":{"release":"2023-01-01T00:00:00Z","publication":"2023","modification":"2026-04-28T03:18:07.111Z","creation":"2026-04-28T03:10:32.98Z"},"accession":"S-EPMC10735002","cross_references":{"pubmed":["38127915"],"doi":["10.1371/journal.pone.0295546"]}}