biostudies-literatureUnknown7(8)Coffin D<h4>Background</h4>The prevalence of hemophilia varies globally, with close to 100% of patients diagnosed in high-income countries and as low as 12% diagnosed in lower-income countries. These inequalities in the care of people with hemophilia exist across various care indicators.<h4>Objectives</h4>This analysis aims to describe the clinical care outcomes of patients in the World Bleeding Disorders Registry (WBDR).<h4>Methods</h4>In 2018, the World Federation of Hemophilia developed a global registry, the WBDR, to permit hemophilia treatment centers to collect clinical data, monitor patient care longitudinally, and identify gaps in management and treatment.<h4>Results</h4>As of July 18, 2022, 10,276 people with hemophilia were enrolled from 87 hemophilia treatment centers in 40 countries. NResearch and practice in thrombosis and haemostasis102264https://www.ebi.ac.uk/biostudies/studies/S-EPMC10772874biostudies-literatureThe World Federation of Hemophilia World Bleeding Disorders Registry: insights from the first 10,000 patients.PMC10772874Songthawee NAdeyemo TJohn JShah SAwodu OOwusu-Ofori SYouttananukorn TRazali HPalascak JNchimba LTzong TJNigam RKNarayana Pillai VSidarthan NHailemariam SUdo CMeknassi NSaengboon SPierce GFSosothikul DNarbekov TBiswas AAziz AIorio ADjenouni ANwagha TKeikhaei BRuchutrakul TBarsallo NBorhany MNagao AHarper PAyoub EShikuku THermans CNguyen HMWong LKotila TObeida ACastillo DSurapolchai PChuansumrit AMbanya DGouider ECatarino CMlombe YWorld Bleeding Disorders Registry Participating InvestigatorsZaman Miah MNasution DPhilip CMicic DNguyen Thi MAlexis CYuguda SDakik PHassan MMekjarusgul PEl Ekiaby ADarwish Mohamad Ibrahim ASee Guan TLambert CHassan TKonkle BHernandez FSi Yuan NSiew Looi TPereira TMotusheva RBlatny JRakoto Alson OAGwarzo DImran ANatesirinilkul RRabbani GAbdel Mohsen MN'dogomo MAi Sim GSuryani SPellegrini GLiam CRuiz-Saez ACoffin DFawcett KNeme DTootoonchian EAl-Rahal NCoetzee MNjuguna FMarhaeni WEl Khorassani MPoudyal BSalhi NAysarieva BZafar TNguyen PPing CLSatti MBlair AGanieva AMunube DNajmi SAli TGovindan SDiop SThevarajah ASyakira NAfalseThe World Federation of Hemophilia World Bleeding Disorders Registry: insights from the first 10,000 patients.<h4>Background</h4>The prevalence of hemophilia varies globally, with close to 100% of patients diagnosed in high-income countries and as low as 12% diagnosed in lower-income countries. These inequalities in the care of people with hemophilia exist across various care indicators.<h4>Objectives</h4>This analysis aims to describe the clinical care outcomes of patients in the World Bleeding Disorders Registry (WBDR).<h4>Methods</h4>In 2018, the World Federation of Hemophilia developed a global registry, the WBDR, to permit hemophilia treatment centers to collect clinical data, monitor patient care longitudinally, and identify gaps in management and treatment.<h4>Results</h4>As of July 18, 2022, 10,276 people with hemophilia were enrolled from 87 hemophilia treatment centers in 40 countries. N2023-01-01T00:00:00Z2023 Nov2025-04-04T09:27:52.886Z2025-04-04T09:27:52.886ZS-EPMC107728743819305210.1016/j.rpth.2023.102264