{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"omics_type":["Unknown"],"volume":["15(1)"],"submitter":["McCallie KR"],"pubmed_abstract":["<h4>Background</h4> OpenNotes, or sharing of medical notes via a patient portal, has been studied extensively in the adult population, but less in pediatric populations, and even more rarely in inpatient pediatric or intensive care settings.<h4>Objectives</h4> This study aimed to understand families' interaction with and perception of inpatient hospital notes shared via patient portal in a community Neonatal Intensive Care Unit (NICU).<h4>Methods</h4> At the end of the NICU discharge education, completed in the patient portal before discharge, families were offered an anonymous survey on OpenNotes.<h4>Results</h4> Out of 446 NICU patients from March 16, 2022 to March 16, 2023, there were 59 respondents (13%). Race was primarily Asian (48%), and English was the predominant language (93%). Most families indicated that the notes were \"very or somewhat easy to understand\" (93%). Seventy-three percent of respondents felt much better about the doctor(s) after reading the notes, and 53% contacted the physicians about something in the notes. Six (16%) felt that OpenNotes were more confusing than helpful.<h4>Conclusion</h4> To the authors' knowledge, this is the first study on NICU families' perceptions of OpenNotes, which indicated positive interactions with the doctors' daily progress notes and gave important suggestions for improvement."],"journal":["Applied clinical informatics"],"pagination":["170-177"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC10901642"],"repository":["biostudies-literature"],"pubmed_title":["Family Perception of OpenNotes in the Neonatal Intensive Care Unit."],"pmcid":["PMC10901642"],"pubmed_authors":["Sarabu C","McCallie KR","Balasundaram M"],"additional_accession":[]},"is_claimable":false,"name":"Family Perception of OpenNotes in the Neonatal Intensive Care Unit.","description":"<h4>Background</h4> OpenNotes, or sharing of medical notes via a patient portal, has been studied extensively in the adult population, but less in pediatric populations, and even more rarely in inpatient pediatric or intensive care settings.<h4>Objectives</h4> This study aimed to understand families' interaction with and perception of inpatient hospital notes shared via patient portal in a community Neonatal Intensive Care Unit (NICU).<h4>Methods</h4> At the end of the NICU discharge education, completed in the patient portal before discharge, families were offered an anonymous survey on OpenNotes.<h4>Results</h4> Out of 446 NICU patients from March 16, 2022 to March 16, 2023, there were 59 respondents (13%). Race was primarily Asian (48%), and English was the predominant language (93%). Most families indicated that the notes were \"very or somewhat easy to understand\" (93%). Seventy-three percent of respondents felt much better about the doctor(s) after reading the notes, and 53% contacted the physicians about something in the notes. Six (16%) felt that OpenNotes were more confusing than helpful.<h4>Conclusion</h4> To the authors' knowledge, this is the first study on NICU families' perceptions of OpenNotes, which indicated positive interactions with the doctors' daily progress notes and gave important suggestions for improvement.","dates":{"release":"2024-01-01T00:00:00Z","publication":"2024 Jan","modification":"2026-06-28T03:14:00.014Z","creation":"2025-04-05T21:46:46.905Z"},"accession":"S-EPMC10901642","cross_references":{"pubmed":["38216145"],"doi":["10.1055/a-2244-4478"]}}