biostudies-literatureClare LEconomic and Social Research CouncilAlzheimer's SocietyNational Institute for Health and Care ResearchAlzheimer&apos;s SocietyVA1548-1566https://www.ebi.ac.uk/biostudies/studies/S-EPMC10966933biostudies-literatureUnknown22(7)<h4>Objectives</h4>We aimed to co-produce and validate an accessible, evidence-based questionnaire measuring 'living well' with dementia that reflects the experience of people with mild-to-moderate dementia.<h4>Methods</h4>Nine people with dementia formed a co-production group. An initial series of workshops generated the format of the questionnaire and a longlist of items. Preliminary testing with 53 IDEAL cohort participants yielded a shortlist of items. These were tested with 136 IDEAL cohort participants during a further round of data collection and assessed for reliability and validity. The co-production group contributed to decisions throughout and agreed the final version.<h4>Results</h4>An initial list of 230 items was reduced to 41 for initial testing, 12 for full testing, and 10 for the final version. The 10-item version had good internal consistency and test-retest reliability, and a single factor structure. Analyses showed significant large positive correlations with scores on measures of quality of life, well-being, and satisfaction with life, and expected patterns of association including a significant large negative association with depression scores and no association with cognitive test scores.<h4>Conclusions</h4>The co-produced My Life Questionnaire is an accessible and valid measure of 'living well' with dementia suitable for use in a range of contexts.Dementia (London, England)Evaluating 'living well' with mild-to-moderate dementia: Co-production and validation of the IDEAL My Life Questionnaire.PMC10966933ES/L001853/2348, AS-PR2-16-001348PEC 16-001Pentecost CQuinn CVictor CCollins RMartyr ALitherland RMorris RGSabatini SClare LGamble LDfalseEvaluating 'living well' with mild-to-moderate dementia: Co-production and validation of the IDEAL My Life Questionnaire.<h4>Objectives</h4>We aimed to co-produce and validate an accessible, evidence-based questionnaire measuring 'living well' with dementia that reflects the experience of people with mild-to-moderate dementia.<h4>Methods</h4>Nine people with dementia formed a co-production group. An initial series of workshops generated the format of the questionnaire and a longlist of items. Preliminary testing with 53 IDEAL cohort participants yielded a shortlist of items. These were tested with 136 IDEAL cohort participants during a further round of data collection and assessed for reliability and validity. The co-production group contributed to decisions throughout and agreed the final version.<h4>Results</h4>An initial list of 230 items was reduced to 41 for initial testing, 12 for full testing, and 10 for the final version. The 10-item version had good internal consistency and test-retest reliability, and a single factor structure. Analyses showed significant large positive correlations with scores on measures of quality of life, well-being, and satisfaction with life, and expected patterns of association including a significant large negative association with depression scores and no association with cognitive test scores.<h4>Conclusions</h4>The co-produced My Life Questionnaire is an accessible and valid measure of 'living well' with dementia suitable for use in a range of contexts.2023-01-01T00:00:00Z2023 Oct2025-04-04T23:52:56.802Z2025-04-04T23:52:56.802ZS-EPMC109669333743625610.1177/14713012231188502