{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"submitter":["Spoden C"],"funding":["Bundesministerium für Bildung und Forschung"],"pagination":["e0306102"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC11207121"],"repository":["biostudies-literature"],"omics_type":["Unknown"],"volume":["19(6)"],"pubmed_abstract":["How do people with amyotrophic lateral sclerosis (PALS) deal with their diagnosis and engage in end-of-life decision-making? What informational or supportive needs do they have for counselling about life-sustaining treatment and end-of-life care? Which correlating conditions and influences relate to these needs and how do they connect to the wish to die or wish to live? We conducted a qualitative interview study with 13 people with ALS in Germany from March 2019 to April 2021. Data collection and analysis followed a grounded theory-based approach and revealed close relationships between coping, informational needs and the preparedness for decision-making. We identified the coping strategies 'avoid thinking about end-of-life' and its counterpart, 'planning ahead to be well-prepared,' and di"],"journal":["PloS one"],"pubmed_title":["Coping and end-of-life decision-making in ALS: A qualitative interview study."],"pmcid":["PMC11207121"],"funding_grant_id":["01GY1715"],"pubmed_authors":["Neitzke G","Wenzel O","Spoden C","Hirschberg I","Erdmann A"],"additional_accession":[]},"is_claimable":false,"name":"Coping and end-of-life decision-making in ALS: A qualitative interview study.","description":"How do people with amyotrophic lateral sclerosis (PALS) deal with their diagnosis and engage in end-of-life decision-making? What informational or supportive needs do they have for counselling about life-sustaining treatment and end-of-life care? Which correlating conditions and influences relate to these needs and how do they connect to the wish to die or wish to live? We conducted a qualitative interview study with 13 people with ALS in Germany from March 2019 to April 2021. Data collection and analysis followed a grounded theory-based approach and revealed close relationships between coping, informational needs and the preparedness for decision-making. We identified the coping strategies 'avoid thinking about end-of-life' and its counterpart, 'planning ahead to be well-prepared,' and di","dates":{"release":"2024-01-01T00:00:00Z","publication":"2024","modification":"2025-04-04T21:22:34.601Z","creation":"2025-04-04T21:22:34.601Z"},"accession":"S-EPMC11207121","cross_references":{"pubmed":["38924023"],"doi":["10.1371/journal.pone.0306102"]}}