{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"submitter":["Junkins EJ"],"funding":["Foundation for Barnes-Jewish Hospital","University of Illinois Center for Social &amp; Behavioral Science Small Grant Program","Alvin J. Siteman Cancer Center","Beckman Institute for Advanced Science and Technology, University of Illinois, Urbana-Champaign","NCI NIH HHS","National Institutes of Health","University of Illinois Interdisciplinary Health Sciences Institute"],"pagination":["17455057241285189"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC11465293"],"repository":["biostudies-literature"],"omics_type":["Unknown"],"volume":["20"],"pubmed_abstract":["<h4>Background</h4>We created a survey to assess menstrual side effects after COVID-19 vaccination when we noticed news stories that denied or discounted the experiences of tens of thousands of menstruating and formerly menstruating people who reported experiencing bleeding changes. This survey had an unprecedented response hundreds of times higher than we had anticipated (<i>n</i> = 101,824).<h4>Objectives</h4>We investigated what motivated our sample to participate without remuneration to understand both general motivations for survey participation as well as why this survey captured the interest of so many.<h4>Design</h4>We used open-ended responses from our online, mixed-method survey collected from April to October 2021.<h4>Methods</h4>Using computer-assisted qualitative data analysis"],"journal":["Women's health (London, England)"],"pubmed_title":["No one listens to us, we know this, so we participated: Qualitative evidence from menstruation research during the COVID-19 pandemic."],"pmcid":["PMC11465293"],"funding_grant_id":["NIH T32CA190194 (MPI: Colditz/James)","T32 CA190194"],"pubmed_authors":["Junkins EJ","Lee KM","Chehab S","Clancy KB"],"additional_accession":[]},"is_claimable":false,"name":"No one listens to us, we know this, so we participated: Qualitative evidence from menstruation research during the COVID-19 pandemic.","description":"<h4>Background</h4>We created a survey to assess menstrual side effects after COVID-19 vaccination when we noticed news stories that denied or discounted the experiences of tens of thousands of menstruating and formerly menstruating people who reported experiencing bleeding changes. This survey had an unprecedented response hundreds of times higher than we had anticipated (<i>n</i> = 101,824).<h4>Objectives</h4>We investigated what motivated our sample to participate without remuneration to understand both general motivations for survey participation as well as why this survey captured the interest of so many.<h4>Design</h4>We used open-ended responses from our online, mixed-method survey collected from April to October 2021.<h4>Methods</h4>Using computer-assisted qualitative data analysis","dates":{"release":"2024-01-01T00:00:00Z","publication":"2024 Jan-Dec","modification":"2026-06-07T07:41:20.057Z","creation":"2025-04-04T11:05:13.44Z"},"accession":"S-EPMC11465293","cross_references":{"pubmed":["39382478"],"doi":["10.1177/17455057241285189"]}}