{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"omics_type":["Unknown"],"volume":["24(1)"],"submitter":["Joanning T"],"pubmed_abstract":["<h4>Background</h4>Inherited epidermolysis bullosa (EB) is a genetic disorder characterized by skin fragility and unique oral features. This prospective study aimed to analyze the correlation between oral health-related quality of life (OHRQoL) and the objectively measured oral health indices of people suffering from EB and within their subtypes.<h4>Methods</h4>The German version of the Oral Health Impact Profile (OHIP-14G) was employed for the assessment of OHRQoL. Furthermore, all participants underwent a comprehensive clinical examination to evaluate their oral health via the Physical Oral Health Index (PhOX). Study participants were included through various self-help groups in Germany, regular appointments at the outpatient clinic for rare diseases with orofacial involvement, at the De"],"journal":["BMC oral health"],"pagination":["1501"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC11657462"],"repository":["biostudies-literature"],"pubmed_title":["Correlation between measured oral health and oral health-related quality of life in people with epidermolysis bullosa: a prospective cohort study."],"pmcid":["PMC11657462"],"pubmed_authors":["Koppe J","Oelerich O","Kleinheinz J","Joanning T","Daume L","Trento G","Hanisch M"],"additional_accession":[]},"is_claimable":false,"name":"Correlation between measured oral health and oral health-related quality of life in people with epidermolysis bullosa: a prospective cohort study.","description":"<h4>Background</h4>Inherited epidermolysis bullosa (EB) is a genetic disorder characterized by skin fragility and unique oral features. This prospective study aimed to analyze the correlation between oral health-related quality of life (OHRQoL) and the objectively measured oral health indices of people suffering from EB and within their subtypes.<h4>Methods</h4>The German version of the Oral Health Impact Profile (OHIP-14G) was employed for the assessment of OHRQoL. Furthermore, all participants underwent a comprehensive clinical examination to evaluate their oral health via the Physical Oral Health Index (PhOX). Study participants were included through various self-help groups in Germany, regular appointments at the outpatient clinic for rare diseases with orofacial involvement, at the De","dates":{"release":"2024-01-01T00:00:00Z","publication":"2024 Dec","modification":"2025-04-04T01:54:37.462Z","creation":"2025-04-04T01:54:37.462Z"},"accession":"S-EPMC11657462","cross_references":{"pubmed":["39702146"],"doi":["10.1186/s12903-024-05337-9"]}}