{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"omics_type":["Unknown"],"volume":["48(3)"],"submitter":["Derks TGJ"],"pubmed_abstract":["Continuous glucose monitoring (CGM) is increasingly used although not officially registered for the management of people living with liver glycogen storage diseases (GSDs). The aims of this study were twofold: (a) to investigate the current experiences of healthcare providers (HCPs), patients, and caregivers using CGM to monitor glucose concentrations in liver GSDs, and (b) to formulate consensus statements. Two web-based questionnaires were distributed, one for HCPs and one for patients and/or their caregivers. The questionnaires collected data on demographics and epidemiology, current use of CGM, and opinions and statements about CGM in GSDs. For the statements, respondents rated their agreement on a 5-point Likert scale, and the consensus level was set at 75%. One Hundred Fourteen HCPs "],"journal":["Journal of inherited metabolic disease"],"pagination":["e70040"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC12074895"],"repository":["biostudies-literature"],"pubmed_title":["State of the Art and Consensus Statements by Healthcare Providers, Patients, and Caregivers on Continuous Glucose Monitoring in Liver Glycogen Storage Diseases."],"pmcid":["PMC12074895"],"pubmed_authors":["Williams M","de Oliveira BM","Apodaca MR","Casswall T","Zsidegh P","Madeo A","Stepien KM","Grunert SC","Bethel R","Haas D","Karall D","Haijer-Schreuder A","Sliwoski L","Ferrecchia I","Hochuli M","Parnarauskiene J","Rossi A","La Rosa A","Riba-Wolman R","Steuerwald U","Preci T","Moslinger D","Gragnaniello V","Kwun AKM","Clemente M","Tonon T","Derks TGJ","El-Gharbawy A","Fazio T","De Leon DD","Shayota B","Weil B","Venegas E","Ezgu F","Loechner K","Olivares-Sandoval Z","Koch RL","Ross K","Ghaloul-Gonzalez L","Skouma A","Groselj U","Maiorana A","White F","Moura de Souza CF","Scherer T","Couce ML","Hessenthaler C","Rink T","Mitchell J","Torkar AD","Corcoran E","Thimm E","Kasapkara CS","Vijay S","Breilyn MS","Caroe C","Opladen T","Scholl-Buergi S","Vergano S","Cohen D","Rodriguez-Buritica DF","Wortmann S","Weinhold N","Rawls-Castillo B","Landau YE","Crushell E","Kaur S","Stachelhaus-Theimer U","Weinstein D","Lapatto R","Kogelmann C","Freisinger P","Saavedra H","Mount M","Kang Y","CGM GSD Collaborators Group","Schumann A","Falanga C","Nuoffer JM","Huemer M","de Boer F","Tomberlin F","Bijarnia-Mahay S","Witters P","Longo N","Neugebauer J","Kamrath C","Engen K","Mohand PP","Matos LD","Shtylla A","Janeiro P","Santer R","Boyer M","King S","van der Klauw MM","Sallago JB","Smith WE","Park JH","Tumer L","Maldonado NL","Overduin RJ","Hennermann JB","Bourque DK","Anderson K","Lund AM","Rosenbaum-Fabian S","Robinson E","Sapuppo A","Gautschi M","Bhattacharya K","Procopio E","Olmos MAM"],"additional_accession":[]},"is_claimable":false,"name":"State of the Art and Consensus Statements by Healthcare Providers, Patients, and Caregivers on Continuous Glucose Monitoring in Liver Glycogen Storage Diseases.","description":"Continuous glucose monitoring (CGM) is increasingly used although not officially registered for the management of people living with liver glycogen storage diseases (GSDs). The aims of this study were twofold: (a) to investigate the current experiences of healthcare providers (HCPs), patients, and caregivers using CGM to monitor glucose concentrations in liver GSDs, and (b) to formulate consensus statements. Two web-based questionnaires were distributed, one for HCPs and one for patients and/or their caregivers. The questionnaires collected data on demographics and epidemiology, current use of CGM, and opinions and statements about CGM in GSDs. For the statements, respondents rated their agreement on a 5-point Likert scale, and the consensus level was set at 75%. One Hundred Fourteen HCPs ","dates":{"release":"2025-01-01T00:00:00Z","publication":"2025 May","modification":"2026-06-02T06:46:37.302Z","creation":"2026-04-15T03:15:16.82Z"},"accession":"S-EPMC12074895","cross_references":{"pubmed":["40360288"],"doi":["10.1002/jimd.70040"]}}