biostudies-literatureUnknown48(3)Derks TGJContinuous glucose monitoring (CGM) is increasingly used although not officially registered for the management of people living with liver glycogen storage diseases (GSDs). The aims of this study were twofold: (a) to investigate the current experiences of healthcare providers (HCPs), patients, and caregivers using CGM to monitor glucose concentrations in liver GSDs, and (b) to formulate consensus statements. Two web-based questionnaires were distributed, one for HCPs and one for patients and/or their caregivers. The questionnaires collected data on demographics and epidemiology, current use of CGM, and opinions and statements about CGM in GSDs. For the statements, respondents rated their agreement on a 5-point Likert scale, and the consensus level was set at 75%. One Hundred Fourteen HCPs Journal of inherited metabolic diseasee70040https://www.ebi.ac.uk/biostudies/studies/S-EPMC12074895biostudies-literatureState of the Art and Consensus Statements by Healthcare Providers, Patients, and Caregivers on Continuous Glucose Monitoring in Liver Glycogen Storage Diseases.PMC12074895Williams Mde Oliveira BMApodaca MRCasswall TZsidegh PMadeo AStepien KMGrunert SCBethel RHaas DKarall DHaijer-Schreuder ASliwoski LFerrecchia IHochuli MParnarauskiene JRossi ALa Rosa ARiba-Wolman RSteuerwald UPreci TMoslinger DGragnaniello VKwun AKMClemente MTonon TDerks TGJEl-Gharbawy AFazio TDe Leon DDShayota BWeil BVenegas EEzgu FLoechner KOlivares-Sandoval ZKoch RLRoss KGhaloul-Gonzalez LSkouma AGroselj UMaiorana AWhite FMoura de Souza CFScherer TCouce MLHessenthaler CRink TMitchell JTorkar ADCorcoran EThimm EKasapkara CSVijay SBreilyn MSCaroe COpladen TScholl-Buergi SVergano SCohen DRodriguez-Buritica DFWortmann SWeinhold NRawls-Castillo BLandau YECrushell EKaur SStachelhaus-Theimer UWeinstein DLapatto RKogelmann CFreisinger PSaavedra HMount MKang YCGM GSD Collaborators GroupSchumann AFalanga CNuoffer JMHuemer Mde Boer FTomberlin FBijarnia-Mahay SWitters PLongo NNeugebauer JKamrath CEngen KMohand PPMatos LDShtylla AJaneiro PSanter RBoyer MKing Svan der Klauw MMSallago JBSmith WEPark JHTumer LMaldonado NLOverduin RJHennermann JBBourque DKAnderson KLund AMRosenbaum-Fabian SRobinson ESapuppo AGautschi MBhattacharya KProcopio EOlmos MAMfalseState of the Art and Consensus Statements by Healthcare Providers, Patients, and Caregivers on Continuous Glucose Monitoring in Liver Glycogen Storage Diseases.Continuous glucose monitoring (CGM) is increasingly used although not officially registered for the management of people living with liver glycogen storage diseases (GSDs). The aims of this study were twofold: (a) to investigate the current experiences of healthcare providers (HCPs), patients, and caregivers using CGM to monitor glucose concentrations in liver GSDs, and (b) to formulate consensus statements. Two web-based questionnaires were distributed, one for HCPs and one for patients and/or their caregivers. The questionnaires collected data on demographics and epidemiology, current use of CGM, and opinions and statements about CGM in GSDs. For the statements, respondents rated their agreement on a 5-point Likert scale, and the consensus level was set at 75%. One Hundred Fourteen HCPs 2025-01-01T00:00:00Z2025 May2026-06-02T06:46:37.302Z2026-04-15T03:15:16.82ZS-EPMC120748954036028810.1002/jimd.70040