{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"omics_type":["Unknown"],"volume":["15(9)"],"submitter":["Rees S"],"pubmed_abstract":["<h4>Objective</h4>To explore experience and prevalence of vulval lichen sclerosus (VLS) diagnosis in general practice using an anonymous patient survey.<h4>Design</h4>Quantitative descriptive cross-sectional survey informed by previous qualitative interviews and developed with patient representatives, sent to people recorded in general practice as having a VLS diagnosis.<h4>Setting</h4>General practices (n=24) in the UK (West Midlands).<h4>Participants</h4>n=177 respondents.<h4>Results</h4>One in five respondents reported that they had been misdiagnosed, and about a third reported that it was a struggle to get treatment. Only one third said they received regular check-ups, recommended in clinical guidelines. One-fifth reported they were not being treated with topical corticosteroids, the m"],"journal":["BMJ open"],"pagination":["e103415"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC12414219"],"repository":["biostudies-literature"],"pubmed_title":["Vulval lichen sclerosus in UK general practice: a cross-sectional survey of patient experience."],"pmcid":["PMC12414219"],"pubmed_authors":["Parsons H","Rees S","Hillman S","Arnold S"],"additional_accession":[]},"is_claimable":false,"name":"Vulval lichen sclerosus in UK general practice: a cross-sectional survey of patient experience.","description":"<h4>Objective</h4>To explore experience and prevalence of vulval lichen sclerosus (VLS) diagnosis in general practice using an anonymous patient survey.<h4>Design</h4>Quantitative descriptive cross-sectional survey informed by previous qualitative interviews and developed with patient representatives, sent to people recorded in general practice as having a VLS diagnosis.<h4>Setting</h4>General practices (n=24) in the UK (West Midlands).<h4>Participants</h4>n=177 respondents.<h4>Results</h4>One in five respondents reported that they had been misdiagnosed, and about a third reported that it was a struggle to get treatment. Only one third said they received regular check-ups, recommended in clinical guidelines. One-fifth reported they were not being treated with topical corticosteroids, the m","dates":{"release":"2025-01-01T00:00:00Z","publication":"2025 Sep","modification":"2026-05-29T22:22:42.475Z","creation":"2026-04-08T06:12:59.422Z"},"accession":"S-EPMC12414219","cross_references":{"pubmed":["40912698"],"doi":["10.1136/bmjopen-2025-103415"]}}