biostudies-literatureUnknown15(9)Rees S<h4>Objective</h4>To explore experience and prevalence of vulval lichen sclerosus (VLS) diagnosis in general practice using an anonymous patient survey.<h4>Design</h4>Quantitative descriptive cross-sectional survey informed by previous qualitative interviews and developed with patient representatives, sent to people recorded in general practice as having a VLS diagnosis.<h4>Setting</h4>General practices (n=24) in the UK (West Midlands).<h4>Participants</h4>n=177 respondents.<h4>Results</h4>One in five respondents reported that they had been misdiagnosed, and about a third reported that it was a struggle to get treatment. Only one third said they received regular check-ups, recommended in clinical guidelines. One-fifth reported they were not being treated with topical corticosteroids, the mBMJ opene103415https://www.ebi.ac.uk/biostudies/studies/S-EPMC12414219biostudies-literatureVulval lichen sclerosus in UK general practice: a cross-sectional survey of patient experience.PMC12414219Parsons HRees SHillman SArnold SfalseVulval lichen sclerosus in UK general practice: a cross-sectional survey of patient experience.<h4>Objective</h4>To explore experience and prevalence of vulval lichen sclerosus (VLS) diagnosis in general practice using an anonymous patient survey.<h4>Design</h4>Quantitative descriptive cross-sectional survey informed by previous qualitative interviews and developed with patient representatives, sent to people recorded in general practice as having a VLS diagnosis.<h4>Setting</h4>General practices (n=24) in the UK (West Midlands).<h4>Participants</h4>n=177 respondents.<h4>Results</h4>One in five respondents reported that they had been misdiagnosed, and about a third reported that it was a struggle to get treatment. Only one third said they received regular check-ups, recommended in clinical guidelines. One-fifth reported they were not being treated with topical corticosteroids, the m2025-01-01T00:00:00Z2025 Sep2026-05-29T22:22:42.475Z2026-04-08T06:12:59.422ZS-EPMC124142194091269810.1136/bmjopen-2025-103415