{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"omics_type":["Unknown"],"volume":["21"],"submitter":["Reimer-Kirkham S"],"pubmed_abstract":["<h4>Background</h4>The period surrounding birth is a crucial and determining time for many women, particularly for those who give birth to a child with albinism (CWA) due to the stigma, discrimination, and threat to safety they immediately encounter, altering their life trajectory.<h4>Objectives</h4>To synthesize existing evidence on the human rights surrounding the birth of a baby with albinism in sub-Saharan Africa.<h4>Design</h4>We conducted an integrative review through a critical participatory approach. Our review question was; What are the experiences surrounding the birth of a CWA for the mother and father and their carers in sub-Saharan Africa?<h4>Data sources and methods</h4>Our study included 35 academic and 47 gray literature articles and reports (for a total of 82 sources) from"],"journal":["Women's health (London, England)"],"pagination":["17455057251395420"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC12699010"],"repository":["biostudies-literature"],"pubmed_title":["A participatory systematic review on human rights and the birth of a child with albinism in sub-Saharan Africa."],"pmcid":["PMC12699010"],"pubmed_authors":["Tettey W","Lang M","Ibhawoh B","Tjope M","Tshuma L","Reimer-Kirkham S","Wilson J","Keitseomore IT","Senkoro P","Rieger K","Dixon D","Siaity-Pallangyo E","Kromberg J","Mokwele T","Daklo KA","Buyco M","Mazibuko N","Nesengani TV","Ohene L","Ero I","Terblanche L","Watts I","Leech R","Astle B","Mooa RS"],"additional_accession":[]},"is_claimable":false,"name":"A participatory systematic review on human rights and the birth of a child with albinism in sub-Saharan Africa.","description":"<h4>Background</h4>The period surrounding birth is a crucial and determining time for many women, particularly for those who give birth to a child with albinism (CWA) due to the stigma, discrimination, and threat to safety they immediately encounter, altering their life trajectory.<h4>Objectives</h4>To synthesize existing evidence on the human rights surrounding the birth of a baby with albinism in sub-Saharan Africa.<h4>Design</h4>We conducted an integrative review through a critical participatory approach. Our review question was; What are the experiences surrounding the birth of a CWA for the mother and father and their carers in sub-Saharan Africa?<h4>Data sources and methods</h4>Our study included 35 academic and 47 gray literature articles and reports (for a total of 82 sources) from","dates":{"release":"2025-01-01T00:00:00Z","publication":"2025 Jan-Dec","modification":"2026-06-06T02:09:26.365Z","creation":"2026-05-24T03:12:29.437Z"},"accession":"S-EPMC12699010","cross_references":{"pubmed":["41378511"],"doi":["10.1177/17455057251395420"]}}