{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"submitter":["King-Dowling S"],"funding":["Children&apos;s Hospital of Philadelphia","Alex&apos;s Lemonade Stand Foundation for Childhood Cancer","National Institute of Nursing Research","National Cancer Institute","Oncology Nursing Society Foundation","NCI NIH HHS"],"pagination":["e30291"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC12944686"],"repository":["biostudies-literature"],"omics_type":["Unknown"],"volume":["70(6)"],"pubmed_abstract":["<h4>Background</h4>Caregivers and adolescents and young adult (AYA) cancer survivors may be at greater psychosocial risk from the COVID-19 pandemic than healthy peers due to complex and traumatic medical histories. This study describes COVID-19-related event exposures, impact, and distress among a large sample of caregivers and AYA cancer survivors and the relationship of these variables to demographic and cancer characteristics.<h4>Procedure</h4>From May 2020 to December 2021, 422 caregivers and 531 AYA survivors completed the COVID-19 Exposures and Family Impact Survey (CEFIS) and CEFIS-AYA, respectively. Total COVID-19-related exposures, average COVID-19-related impact, and COVID-19-related distress were calculated. Conventional content analysis was used to analyze free-text responses a"],"journal":["Pediatric blood & cancer"],"pubmed_title":["Psychosocial impact of COVID-19 on caregivers and adolescents and young adult survivors of childhood cancer."],"pmcid":["PMC12944686"],"funding_grant_id":["K08 CA241335"],"pubmed_authors":["Faust H","Deatrick JA","Madden R","Hammer SN","King-Dowling S","Pai A","Albee M","Daniel L","Barakat LP","Psihogios AM","Drake S","Ahmed A","Schwartz LA","Freyer D"],"additional_accession":[]},"is_claimable":false,"name":"Psychosocial impact of COVID-19 on caregivers and adolescents and young adult survivors of childhood cancer.","description":"<h4>Background</h4>Caregivers and adolescents and young adult (AYA) cancer survivors may be at greater psychosocial risk from the COVID-19 pandemic than healthy peers due to complex and traumatic medical histories. This study describes COVID-19-related event exposures, impact, and distress among a large sample of caregivers and AYA cancer survivors and the relationship of these variables to demographic and cancer characteristics.<h4>Procedure</h4>From May 2020 to December 2021, 422 caregivers and 531 AYA survivors completed the COVID-19 Exposures and Family Impact Survey (CEFIS) and CEFIS-AYA, respectively. Total COVID-19-related exposures, average COVID-19-related impact, and COVID-19-related distress were calculated. Conventional content analysis was used to analyze free-text responses a","dates":{"release":"2023-01-01T00:00:00Z","publication":"2023 Jun","modification":"2026-07-16T21:55:25.818Z","creation":"2026-07-10T03:15:30.69Z"},"accession":"S-EPMC12944686","cross_references":{"pubmed":["36951413"],"doi":["10.1002/pbc.30291"]}}