biostudies-literatureUnknown25(1)Vonk-Klaassen SM<h4>Aim</h4>Many long-term ostomates are 'out-of-sight' of healthcare, and it is unknown how ostomates deal with ostomy-related problems and how these problems affect their quality of life (QOL). The aim is to examine patient-related studies describing ostomy-related problems and their impact on the perceived QOL of long-term colostomates.<h4>Methods</h4>The electronic databases PubMed (MEDLINE), CINAHL, Cochrane Library and PsycINFO were systematically searched. All studies were included in which ostomy-specific QOL was measured using validated multidimensional instruments.<h4>Results</h4>Of the 6447 citations identified, 14 prevailingly descriptive cross-sectional studies were included. Three different validated multidimensional instruments for measuring QOL in ostomates were used (EORTCQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation125-33https://www.ebi.ac.uk/biostudies/studies/S-EPMC4706578biostudies-literatureOstomy-related problems and their impact on quality of life of colorectal cancer ostomates: a systematic review.PMC4706578den Ouden MEEddes EHde Vocht HMVonk-Klaassen SMSchuurmans MJfalseOstomy-related problems and their impact on quality of life of colorectal cancer ostomates: a systematic review.<h4>Aim</h4>Many long-term ostomates are 'out-of-sight' of healthcare, and it is unknown how ostomates deal with ostomy-related problems and how these problems affect their quality of life (QOL). The aim is to examine patient-related studies describing ostomy-related problems and their impact on the perceived QOL of long-term colostomates.<h4>Methods</h4>The electronic databases PubMed (MEDLINE), CINAHL, Cochrane Library and PsycINFO were systematically searched. All studies were included in which ostomy-specific QOL was measured using validated multidimensional instruments.<h4>Results</h4>Of the 6447 citations identified, 14 prevailingly descriptive cross-sectional studies were included. Three different validated multidimensional instruments for measuring QOL in ostomates were used (EORTC2016-01-01T00:00:00Z2016 Jan2025-04-18T16:29:12.419Z2019-03-27T02:06:36ZS-EPMC47065782612398310.1007/s11136-015-1050-3