{"database":"biostudies-literature","file_versions":[],"scores":{"citationCount":0,"reanalysisCount":0,"viewCount":45,"searchCount":0},"additional":{"submitter":["Howell CR"],"funding":["NICHD NIH HHS","National Institutes of Health","NIAMS NIH HHS"],"pagination":["1815-23"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC4893933"],"repository":["biostudies-literature"],"omics_type":["Unknown"],"volume":["25(7)"],"pubmed_abstract":["<h4>Purpose</h4>To examine known-groups validity of the Patient-Reported Outcomes Measurement Information System (PROMIS(®)) Short Forms (SFs) for adolescents and young adults with special healthcare needs (SHCN) using data collected from the PROMIS Linking Study.<h4>Methods</h4>In total, 292 adolescents aged 14-17.9 years and 300 young adults aged 18-20 years with SHCN from the PROMIS Linking Study were used for analyses. Presence of SHCN was classified into three categories (medication use, service use, and functional limitations). HRQoL was measured with the PROMIS Pediatric and Adult SFs. Differences in health-related quality of life (HRQoL) domain scores between SHCN sample and the norms of the PROMIS pediatric and adult calibration samples, respectively, were compared using t tests. Associations of HRQoL scores with the presence of individual SHCN categories were tested using linear regression.<h4>Results</h4>All HRQoL domain scores for the SHCN samples were significantly worse than the respective calibration samples. Adolescents and young adults with SHCN-related service use and functional limitations reported worse HRQoL than those without service use and functional limitations (p's < 0.01).<h4>Conclusions</h4>PROMIS Pediatric and Adult SFs possess satisfactory known-groups validity related to SHCN status."],"journal":["Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation"],"pubmed_title":["Known-groups validity of the Patient-Reported Outcomes Measurement Information System (PROMIS(®)) in adolescents and young adults with special healthcare needs."],"pmcid":["PMC4893933"],"funding_grant_id":["U54 AR057943","U54 AR057951","U01 AR052170","U01 AR052181","U01 AR052171","U01 AR057940","U01 AR052186","U01 AR057971","U54 AR057926","U01 AR052177","U01 AR052155","U01 AR057967","U01 AR057956","U01 AR052158","U01 AR057954","U01 AR057948","U01 AR057936","U01 AR057929","K23 HD057146"],"pubmed_authors":["Reeve BB","Gross HE","DeWalt DA","Huang IC","Howell CR"],"view_count":["45"],"additional_accession":[]},"is_claimable":false,"name":"Known-groups validity of the Patient-Reported Outcomes Measurement Information System (PROMIS(®)) in adolescents and young adults with special healthcare needs.","description":"<h4>Purpose</h4>To examine known-groups validity of the Patient-Reported Outcomes Measurement Information System (PROMIS(®)) Short Forms (SFs) for adolescents and young adults with special healthcare needs (SHCN) using data collected from the PROMIS Linking Study.<h4>Methods</h4>In total, 292 adolescents aged 14-17.9 years and 300 young adults aged 18-20 years with SHCN from the PROMIS Linking Study were used for analyses. Presence of SHCN was classified into three categories (medication use, service use, and functional limitations). HRQoL was measured with the PROMIS Pediatric and Adult SFs. Differences in health-related quality of life (HRQoL) domain scores between SHCN sample and the norms of the PROMIS pediatric and adult calibration samples, respectively, were compared using t tests. Associations of HRQoL scores with the presence of individual SHCN categories were tested using linear regression.<h4>Results</h4>All HRQoL domain scores for the SHCN samples were significantly worse than the respective calibration samples. Adolescents and young adults with SHCN-related service use and functional limitations reported worse HRQoL than those without service use and functional limitations (p's < 0.01).<h4>Conclusions</h4>PROMIS Pediatric and Adult SFs possess satisfactory known-groups validity related to SHCN status.","dates":{"release":"2016-01-01T00:00:00Z","publication":"2016 Jul","modification":"2024-11-20T03:48:00.409Z","creation":"2019-03-27T02:15:21Z"},"accession":"S-EPMC4893933","cross_references":{"pubmed":["26872912"],"doi":["10.1007/s11136-016-1237-2"]}}