{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"submitter":["Parikh R"],"funding":["NEI NIH HHS","National Eye Institute","The UPenn Hospital Board of Women Visitors","Research to Prevent Blindness","The Paul and Evanina Bell Mackall Foundation Trust","F. M. Kirby Foundation"],"pagination":["694-704"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC5748378"],"repository":["biostudies-literature"],"omics_type":["Unknown"],"volume":["24(6)"],"pubmed_abstract":["<b>Objective:</b> African Americans have been historically underrepresented in research studies. Our aim was to evaluate factors influencing enrollment in the Primary Open-Angle African American Glaucoma Genetics (POAAGG) study. <b>Design:</b> Patients approached to enroll in the POAAGG study were asked to complete a 15-item survey addressing demographic characteristics, knowledge of genetics and glaucoma, and opinions on human research. Survey responses were compared between subjects who enrolled (Enrollers) and did not enroll (Decliners) in the POAAGG study. <b>Results:</b> Enrollers (<i>N</i> = 190) were 3.7 years younger (<i>P</i> = 0.007) and had similar gender, education, and income level to Decliners (<i>N</i> = 117). Knowledge about genetics and glaucoma was similar between groups."],"journal":["Ethnicity & health"],"pubmed_title":["Factors associated with participation by African Americans in a study of the genetics of glaucoma."],"pmcid":["PMC5748378"],"funding_grant_id":["P30 EY001583","R01 EY023557","1RO1EY023557-01"],"pubmed_authors":["Pan W","O'Brien J","Miller-Ellis E","O'Keefe L","Sankar P","Lehman A","Maguire M","Parikh R","Salowe R","Mccoskey M","Addis V"],"additional_accession":[]},"is_claimable":false,"name":"Factors associated with participation by African Americans in a study of the genetics of glaucoma.","description":"<b>Objective:</b> African Americans have been historically underrepresented in research studies. Our aim was to evaluate factors influencing enrollment in the Primary Open-Angle African American Glaucoma Genetics (POAAGG) study. <b>Design:</b> Patients approached to enroll in the POAAGG study were asked to complete a 15-item survey addressing demographic characteristics, knowledge of genetics and glaucoma, and opinions on human research. Survey responses were compared between subjects who enrolled (Enrollers) and did not enroll (Decliners) in the POAAGG study. <b>Results:</b> Enrollers (<i>N</i> = 190) were 3.7 years younger (<i>P</i> = 0.007) and had similar gender, education, and income level to Decliners (<i>N</i> = 117). Knowledge about genetics and glaucoma was similar between groups.","dates":{"release":"2019-01-01T00:00:00Z","publication":"2019 Aug","modification":"2025-04-26T18:44:46.109Z","creation":"2019-03-26T22:26:38Z"},"accession":"S-EPMC5748378","cross_references":{"pubmed":["28669230"],"doi":["10.1080/13557858.2017.1346189"]}}