{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"submitter":["Hsiao B"],"funding":["NCATS NIH HHS","Rheumatology Research Foundation Innovative Research","NIAMS NIH HHS"],"pagination":["629-637"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC6310675"],"repository":["biostudies-literature"],"omics_type":["Unknown"],"volume":["71(5)"],"pubmed_abstract":["<h4>Objective</h4>In this proof-of-concept study, we sought to evaluate whether a value clarification tool enabling patients to view a set of rheumatoid arthritis (RA) treatment preference phenotypes could be used to support shared decision-making at the point-of-care.<h4>Methods</h4>We conducted a pretest/post test study. English-speaking patients with RA presenting to their scheduled outpatient visits were asked to participate. Visits for patients with active RA were transcribed. Shared decision-making components were measured using a quantitative coding scheme based on an established model of shared decision-making.<h4>Results</h4>Forty-six visits were included in the pretest and 40 in the post test phases. Providers offered more disease-modifying antirheumatic drugs (DMARDs) (2 or more) in the post test visits (60%) compared to the pretest visits (47.8%). Overall, more patients vocalized their values and/or preferences in the post test visits compared to the pretest visits for treatment escalation decisions including a choice of 1 new DMARD (90.9% versus 56.3%), 2 or more new DMARDs (95.8% versus 86.4%), as well as prednisone (87.5% versus 66.7%). Providers were also more likely to base their recommendations on patients' values and/or preferences in the post test (100% of 6 visits) than the pretest (64.3% of 14 visits) phases during visits in which a recommendation was made. The mean ± SD length of the visit was 29.9 ± 11.6 minutes and 25.1 ± 10.7 minutes in the pretest and post test phases, respectively.<h4>Conclusion</h4>This study provides an early indication that a value clarification tool allowing patients to consider a set of preference phenotypes can support shared decision-making at the point-of-care without extending visit time."],"journal":["Arthritis care & research"],"pubmed_title":["Preference Phenotypes in Support of Shared Decision-Making at Point-of-Care for Patients With Rheumatoid Arthritis: A Proof-of-Concept Study."],"pmcid":["PMC6310675"],"funding_grant_id":["K24 AR060231","UL1 TR001863","T32 AR007107"],"pubmed_authors":["Binder-Finnema P","Nowell WB","Wiedmeyer C","Hsiao B","Michel G","Fraenkel L"],"additional_accession":[]},"is_claimable":false,"name":"Preference Phenotypes in Support of Shared Decision-Making at Point-of-Care for Patients With Rheumatoid Arthritis: A Proof-of-Concept Study.","description":"<h4>Objective</h4>In this proof-of-concept study, we sought to evaluate whether a value clarification tool enabling patients to view a set of rheumatoid arthritis (RA) treatment preference phenotypes could be used to support shared decision-making at the point-of-care.<h4>Methods</h4>We conducted a pretest/post test study. English-speaking patients with RA presenting to their scheduled outpatient visits were asked to participate. Visits for patients with active RA were transcribed. Shared decision-making components were measured using a quantitative coding scheme based on an established model of shared decision-making.<h4>Results</h4>Forty-six visits were included in the pretest and 40 in the post test phases. Providers offered more disease-modifying antirheumatic drugs (DMARDs) (2 or more) in the post test visits (60%) compared to the pretest visits (47.8%). Overall, more patients vocalized their values and/or preferences in the post test visits compared to the pretest visits for treatment escalation decisions including a choice of 1 new DMARD (90.9% versus 56.3%), 2 or more new DMARDs (95.8% versus 86.4%), as well as prednisone (87.5% versus 66.7%). Providers were also more likely to base their recommendations on patients' values and/or preferences in the post test (100% of 6 visits) than the pretest (64.3% of 14 visits) phases during visits in which a recommendation was made. The mean ± SD length of the visit was 29.9 ± 11.6 minutes and 25.1 ± 10.7 minutes in the pretest and post test phases, respectively.<h4>Conclusion</h4>This study provides an early indication that a value clarification tool allowing patients to consider a set of preference phenotypes can support shared decision-making at the point-of-care without extending visit time.","dates":{"release":"2019-01-01T00:00:00Z","publication":"2019 May","modification":"2021-02-20T17:48:05Z","creation":"2020-10-29T11:54:25Z"},"accession":"S-EPMC6310675","cross_references":{"pubmed":["29953733"],"doi":["10.1002/acr.23684"]}}