{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"omics_type":["Unknown"],"volume":["59(5)"],"submitter":["Cunningham NA"],"pubmed_abstract":["<h4>Background and objectives</h4>To determine how the wellbeing of carers of people with dementia is understood and measured in contemporary health research.<h4>Research design and methods</h4>A systematic review of reviews was designed, registered with PROSPERO, and then conducted. This focused on systematic reviews of research literature published from 2010 onwards; with the wellbeing of carers of people with dementia being a primary focus. N = 19 studies met the inclusion criteria. Quality appraisal was conducted using the AMSTAR tool (2015). A narrative synthesis was conducted to explore how wellbeing is currently being understood and measured.<h4>Results</h4>Contemporary health research most frequently conceptualizes wellbeing in the context of a loss-deficit model. Current healthcare research has not kept pace with wider discussions surrounding wellbeing which have become both more complex and more sophisticated. Relying on the loss-deficit model limits current research in understanding and measuring the lived experience of carers of people with dementia. There remains need for a clear and consistent measurement of wellbeing.<h4>Discussion and implications</h4>Without clear consensus, health professionals must be careful when using the term \"wellbeing\". To help inform healthcare policy and practice, we offer a starting point for a richer concept of wellbeing in the context of dementia that is multi-faceted to include positive dimensions of caregiving in addition to recognized aspects of burden. Standardized and robust measurements are needed to enhance research and there may be benefit from developing a more mixed, blended approach to measurement."],"journal":["The Gerontologist"],"pagination":["e552-e564"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC6857741"],"repository":["biostudies-literature"],"pubmed_title":["Understanding and Measuring the Wellbeing of Carers of People With Dementia."],"pmcid":["PMC6857741"],"pubmed_authors":["Roberston JM","Cunningham NA","Cunningham TR"],"additional_accession":[]},"is_claimable":false,"name":"Understanding and Measuring the Wellbeing of Carers of People With Dementia.","description":"<h4>Background and objectives</h4>To determine how the wellbeing of carers of people with dementia is understood and measured in contemporary health research.<h4>Research design and methods</h4>A systematic review of reviews was designed, registered with PROSPERO, and then conducted. This focused on systematic reviews of research literature published from 2010 onwards; with the wellbeing of carers of people with dementia being a primary focus. N = 19 studies met the inclusion criteria. Quality appraisal was conducted using the AMSTAR tool (2015). A narrative synthesis was conducted to explore how wellbeing is currently being understood and measured.<h4>Results</h4>Contemporary health research most frequently conceptualizes wellbeing in the context of a loss-deficit model. Current healthcare research has not kept pace with wider discussions surrounding wellbeing which have become both more complex and more sophisticated. Relying on the loss-deficit model limits current research in understanding and measuring the lived experience of carers of people with dementia. There remains need for a clear and consistent measurement of wellbeing.<h4>Discussion and implications</h4>Without clear consensus, health professionals must be careful when using the term \"wellbeing\". To help inform healthcare policy and practice, we offer a starting point for a richer concept of wellbeing in the context of dementia that is multi-faceted to include positive dimensions of caregiving in addition to recognized aspects of burden. Standardized and robust measurements are needed to enhance research and there may be benefit from developing a more mixed, blended approach to measurement.","dates":{"release":"2019-01-01T00:00:00Z","publication":"2019 Sep","modification":"2025-05-29T20:18:21.82Z","creation":"2020-05-21T19:14:10Z"},"accession":"S-EPMC6857741","cross_references":{"pubmed":["29566167"],"doi":["10.1093/geront/gny018"]}}