biostudies-literature00440Unknown59(5)Cunningham NA<h4>Background and objectives</h4>To determine how the wellbeing of carers of people with dementia is understood and measured in contemporary health research.<h4>Research design and methods</h4>A systematic review of reviews was designed, registered with PROSPERO, and then conducted. This focused on systematic reviews of research literature published from 2010 onwards; with the wellbeing of carers of people with dementia being a primary focus. N = 19 studies met the inclusion criteria. Quality appraisal was conducted using the AMSTAR tool (2015). A narrative synthesis was conducted to explore how wellbeing is currently being understood and measured.<h4>Results</h4>Contemporary health research most frequently conceptualizes wellbeing in the context of a loss-deficit model. Current healthcare research has not kept pace with wider discussions surrounding wellbeing which have become both more complex and more sophisticated. Relying on the loss-deficit model limits current research in understanding and measuring the lived experience of carers of people with dementia. There remains need for a clear and consistent measurement of wellbeing.<h4>Discussion and implications</h4>Without clear consensus, health professionals must be careful when using the term "wellbeing". To help inform healthcare policy and practice, we offer a starting point for a richer concept of wellbeing in the context of dementia that is multi-faceted to include positive dimensions of caregiving in addition to recognized aspects of burden. Standardized and robust measurements are needed to enhance research and there may be benefit from developing a more mixed, blended approach to measurement.The Gerontologiste552-e564https://www.ebi.ac.uk/biostudies/studies/S-EPMC6857741biostudies-literatureUnderstanding and Measuring the Wellbeing of Carers of People With Dementia.PMC6857741Roberston JMCunningham NACunningham TR44falseUnderstanding and Measuring the Wellbeing of Carers of People With Dementia.<h4>Background and objectives</h4>To determine how the wellbeing of carers of people with dementia is understood and measured in contemporary health research.<h4>Research design and methods</h4>A systematic review of reviews was designed, registered with PROSPERO, and then conducted. This focused on systematic reviews of research literature published from 2010 onwards; with the wellbeing of carers of people with dementia being a primary focus. N = 19 studies met the inclusion criteria. Quality appraisal was conducted using the AMSTAR tool (2015). A narrative synthesis was conducted to explore how wellbeing is currently being understood and measured.<h4>Results</h4>Contemporary health research most frequently conceptualizes wellbeing in the context of a loss-deficit model. Current healthcare research has not kept pace with wider discussions surrounding wellbeing which have become both more complex and more sophisticated. Relying on the loss-deficit model limits current research in understanding and measuring the lived experience of carers of people with dementia. There remains need for a clear and consistent measurement of wellbeing.<h4>Discussion and implications</h4>Without clear consensus, health professionals must be careful when using the term "wellbeing". To help inform healthcare policy and practice, we offer a starting point for a richer concept of wellbeing in the context of dementia that is multi-faceted to include positive dimensions of caregiving in addition to recognized aspects of burden. Standardized and robust measurements are needed to enhance research and there may be benefit from developing a more mixed, blended approach to measurement.2019-01-01T00:00:00Z2019 Sep2024-11-06T20:14:33.135Z2020-05-21T19:14:10ZS-EPMC68577412956616710.1093/geront/gny018