{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"submitter":["Friebert S"],"funding":["NCATS NIH HHS","NCRR NIH HHS","NINR NIH HHS"],"pagination":["e205424"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC7237980"],"repository":["biostudies-literature"],"omics_type":["Unknown"],"volume":["3(5)"],"pubmed_abstract":["Importance:Lack of pediatric advance care planning has been associated with poor communication, increased hospitalization, poor quality of life, and legal actions. Clinicians presume that families understand adolescents' treatment preferences for end-of-life care. Objective:To examine patient-reported end-of-life values and needs of adolescents with cancer and congruence with their families' understanding of these needs. Design, Setting, and Participants:This cross-sectional survey was conducted among adolescent-family dyads from July 16, 2016, to April 30, 2019, at 4 tertiary care pediatric US hospitals. Participants included 80 adolescent-family dyads (160 participants) within a larger study facilitating pediatric advance care planning. Adolescent eligibility criteria included being aged"],"journal":["JAMA network open"],"pubmed_title":["Congruence Gaps Between Adolescents With Cancer and Their Families Regarding Values, Goals, and Beliefs About End-of-Life Care."],"pmcid":["PMC7237980"],"funding_grant_id":["UL1 TR000075","R01 NR014052","UL1 RR031988"],"pubmed_authors":["Thompkins JD","Needle J","Cheng YI","Grossoehme DH","Wang J","Friebert S","Lyon ME","Baker JN"],"additional_accession":[]},"is_claimable":false,"name":"Congruence Gaps Between Adolescents With Cancer and Their Families Regarding Values, Goals, and Beliefs About End-of-Life Care.","description":"Importance:Lack of pediatric advance care planning has been associated with poor communication, increased hospitalization, poor quality of life, and legal actions. Clinicians presume that families understand adolescents' treatment preferences for end-of-life care. Objective:To examine patient-reported end-of-life values and needs of adolescents with cancer and congruence with their families' understanding of these needs. Design, Setting, and Participants:This cross-sectional survey was conducted among adolescent-family dyads from July 16, 2016, to April 30, 2019, at 4 tertiary care pediatric US hospitals. Participants included 80 adolescent-family dyads (160 participants) within a larger study facilitating pediatric advance care planning. Adolescent eligibility criteria included being aged","dates":{"release":"2020-01-01T00:00:00Z","publication":"2020 May","modification":"2025-04-04T09:04:42.03Z","creation":"2020-05-25T07:06:19Z"},"accession":"S-EPMC7237980","cross_references":{"pubmed":["32427325"],"doi":["10.1001/jamanetworkopen.2020.5424"]}}