{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"submitter":["Sloan M"],"funding":["LUPUS UK","Versus Arthritis"],"pagination":["rkaa072"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC7798562"],"repository":["biostudies-literature"],"omics_type":["Unknown"],"volume":["5(1)"],"pubmed_abstract":["<h4>Objective</h4>The aim was to explore the self-reported impact of the COVID-19 pandemic on changes to care and behaviour in UK patients with systemic autoimmune rheumatic diseases, to help ensure that patient experiences are considered in future pandemic planning.<h4>Methods</h4>This was a longitudinal mixed methods study, with a cohort completing baseline surveys in March 2020 and follow-up surveys in June 2020 (<i>n</i> = 111), combined with thematic analysis of the LUPUS UK forum and participant interviews (<i>n</i> = 28).<h4>Results</h4>Cancellations of routine care and difficulties in accessing medical support contributed to some participants deteriorating physically, including reports of hospitalizations. The majority of participants reported that fear of COVID-19 and disruptions "],"journal":["Rheumatology advances in practice"],"pubmed_title":["The impact of the COVID-19 pandemic on the medical care and health-care behaviour of patients with lupus and other systemic autoimmune diseases: a mixed methods longitudinal study."],"pmcid":["PMC7798562"],"funding_grant_id":["21992","22600"],"pubmed_authors":["Harwood R","Pilling M","Wincup C","Bosley M","Sutton S","Gordon C","Sloan M","Brimicombe J","Holloway L","Lever E","D'Cruz D"],"additional_accession":[]},"is_claimable":false,"name":"The impact of the COVID-19 pandemic on the medical care and health-care behaviour of patients with lupus and other systemic autoimmune diseases: a mixed methods longitudinal study.","description":"<h4>Objective</h4>The aim was to explore the self-reported impact of the COVID-19 pandemic on changes to care and behaviour in UK patients with systemic autoimmune rheumatic diseases, to help ensure that patient experiences are considered in future pandemic planning.<h4>Methods</h4>This was a longitudinal mixed methods study, with a cohort completing baseline surveys in March 2020 and follow-up surveys in June 2020 (<i>n</i> = 111), combined with thematic analysis of the LUPUS UK forum and participant interviews (<i>n</i> = 28).<h4>Results</h4>Cancellations of routine care and difficulties in accessing medical support contributed to some participants deteriorating physically, including reports of hospitalizations. The majority of participants reported that fear of COVID-19 and disruptions ","dates":{"release":"2021-01-01T00:00:00Z","publication":"2021","modification":"2026-07-16T01:31:29.889Z","creation":"2021-02-21T11:41:16Z"},"accession":"S-EPMC7798562","cross_references":{"pubmed":["33604501"],"doi":["10.1093/rap/rkaa072"]}}