{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"omics_type":["Unknown"],"volume":["30(1)"],"submitter":["Griffiths C"],"funding":["Restore Burn and Wound Research","Scar Free Foundation","Scar Free Foundation Centre for Children&apos;s Burns Research","Dan&apos;s Fund for Burns"],"pubmed_abstract":["<h4>Purpose</h4>Patient-reported outcome measures (PROMs) identify patient needs and therapeutic progress. This paper outlines the development and validation of the CARe Burn Scale: Child Form, a parent-proxy-reported outcome measure that assesses quality of life in children aged 8 and under living with a burn injury.<h4>Methods</h4>A literature review and interviews with 12 parents of children with a burn and seven health professionals informed the development of a conceptual framework and draft PROM. Cognitive debriefing interviews with 18 parents and eight health professionals provided feedback to ascertain content validity, and 311 parents took part in field testing. Rasch and traditional psychometric analyses were conducted to create a shortened version. Further psychometric analyses "],"journal":["Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation"],"pagination":["239-250"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC7847857"],"repository":["biostudies-literature"],"pubmed_title":["The development and validation of the CARe Burn Scale: Child Form: a parent-proxy-reported outcome measure assessing quality of life for children aged 8 years and under living with a burn injury."],"pmcid":["PMC7847857"],"pubmed_authors":["Griffiths C","Pickles T","Harcourt D","Tollow P","Grzeda M","Hollen L","Guest E"],"additional_accession":[]},"is_claimable":false,"name":"The development and validation of the CARe Burn Scale: Child Form: a parent-proxy-reported outcome measure assessing quality of life for children aged 8 years and under living with a burn injury.","description":"<h4>Purpose</h4>Patient-reported outcome measures (PROMs) identify patient needs and therapeutic progress. This paper outlines the development and validation of the CARe Burn Scale: Child Form, a parent-proxy-reported outcome measure that assesses quality of life in children aged 8 and under living with a burn injury.<h4>Methods</h4>A literature review and interviews with 12 parents of children with a burn and seven health professionals informed the development of a conceptual framework and draft PROM. Cognitive debriefing interviews with 18 parents and eight health professionals provided feedback to ascertain content validity, and 311 parents took part in field testing. Rasch and traditional psychometric analyses were conducted to create a shortened version. Further psychometric analyses ","dates":{"release":"2021-01-01T00:00:00Z","publication":"2021 Jan","modification":"2025-04-18T15:57:07.56Z","creation":"2025-04-07T02:49:10.701Z"},"accession":"S-EPMC7847857","cross_references":{"pubmed":["32902793"],"doi":["10.1007/s11136-020-02627-x"]}}