{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"submitter":["Rutland SB"],"funding":["NIDDK NIH HHS"],"pagination":["e19413"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC7872830"],"repository":["biostudies-literature"],"omics_type":["Unknown"],"volume":["5(1)"],"pubmed_abstract":["<h4>Background</h4>Cystic fibrosis (CF) is an inherited chronic condition that requires extensive daily care and quarterly clinic visits with a multidisciplinary care team. The limited exchange of information outside of the quarterly clinic visits impedes optimal disease self-management, patient engagement, and shared decision making.<h4>Objective</h4>The aim of this study is to adapt a mobile health (mHealth) app originally developed in Sweden to the needs of patients, families, and health care providers in a CF center in the United States and to test it as a platform for sharing patient-generated health data with the CF health care team.<h4>Methods</h4>Focus groups with health care providers of patients with CF, adolescents with CF, and caregivers of children with CF were conducted to de"],"journal":["JMIR formative research"],"pubmed_title":["A Mobile Health Platform for Self-Management of Pediatric Cystic Fibrosis: Qualitative Study of Adaptation to Stakeholder Needs and Integration in Clinical Settings."],"pmcid":["PMC7872830"],"funding_grant_id":["P30 DK072482"],"pubmed_authors":["Geurs R","Oates GR","Mims C","Bergquist RP","Gutierrez HH","Rutland SB","Hager A"],"additional_accession":[]},"is_claimable":false,"name":"A Mobile Health Platform for Self-Management of Pediatric Cystic Fibrosis: Qualitative Study of Adaptation to Stakeholder Needs and Integration in Clinical Settings.","description":"<h4>Background</h4>Cystic fibrosis (CF) is an inherited chronic condition that requires extensive daily care and quarterly clinic visits with a multidisciplinary care team. The limited exchange of information outside of the quarterly clinic visits impedes optimal disease self-management, patient engagement, and shared decision making.<h4>Objective</h4>The aim of this study is to adapt a mobile health (mHealth) app originally developed in Sweden to the needs of patients, families, and health care providers in a CF center in the United States and to test it as a platform for sharing patient-generated health data with the CF health care team.<h4>Methods</h4>Focus groups with health care providers of patients with CF, adolescents with CF, and caregivers of children with CF were conducted to de","dates":{"release":"2021-01-01T00:00:00Z","publication":"2021 Jan","modification":"2026-05-03T01:37:28.315Z","creation":"2021-02-25T09:07:27Z"},"accession":"S-EPMC7872830","cross_references":{"pubmed":["33496667"],"doi":["10.2196/19413"]}}