biostudies-literatureRutland SBNIDDK NIH HHSe19413https://www.ebi.ac.uk/biostudies/studies/S-EPMC7872830biostudies-literatureUnknown5(1)<h4>Background</h4>Cystic fibrosis (CF) is an inherited chronic condition that requires extensive daily care and quarterly clinic visits with a multidisciplinary care team. The limited exchange of information outside of the quarterly clinic visits impedes optimal disease self-management, patient engagement, and shared decision making.<h4>Objective</h4>The aim of this study is to adapt a mobile health (mHealth) app originally developed in Sweden to the needs of patients, families, and health care providers in a CF center in the United States and to test it as a platform for sharing patient-generated health data with the CF health care team.<h4>Methods</h4>Focus groups with health care providers of patients with CF, adolescents with CF, and caregivers of children with CF were conducted to deJMIR formative researchA Mobile Health Platform for Self-Management of Pediatric Cystic Fibrosis: Qualitative Study of Adaptation to Stakeholder Needs and Integration in Clinical Settings.PMC7872830P30 DK072482Geurs ROates GRMims CBergquist RPGutierrez HHRutland SBHager AfalseA Mobile Health Platform for Self-Management of Pediatric Cystic Fibrosis: Qualitative Study of Adaptation to Stakeholder Needs and Integration in Clinical Settings.<h4>Background</h4>Cystic fibrosis (CF) is an inherited chronic condition that requires extensive daily care and quarterly clinic visits with a multidisciplinary care team. The limited exchange of information outside of the quarterly clinic visits impedes optimal disease self-management, patient engagement, and shared decision making.<h4>Objective</h4>The aim of this study is to adapt a mobile health (mHealth) app originally developed in Sweden to the needs of patients, families, and health care providers in a CF center in the United States and to test it as a platform for sharing patient-generated health data with the CF health care team.<h4>Methods</h4>Focus groups with health care providers of patients with CF, adolescents with CF, and caregivers of children with CF were conducted to de2021-01-01T00:00:00Z2021 Jan2026-05-03T01:37:28.315Z2021-02-25T09:07:27ZS-EPMC78728303349666710.2196/19413