{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"omics_type":["Unknown"],"volume":["8(2)"],"submitter":["Lyu Y"],"funding":["Beijing Hospitals Authority"],"pubmed_abstract":["<h4>Objective</h4>This study aimed to explore the lived experiences of the disease journey and patients' care needs with idiopathic pulmonary fibrosis (IPF).<h4>Methods</h4>Face-to-face semi-structured interviews were conducted with a purposive sampling of IPF patients admitted to the department of respiratory medicine in a tertiary hospital in Beijing. Interview data were analyzed using the thematic analysis method. In the end, 16 patients were interviewed.<h4>Results</h4>Four themes emerged from the qualitative data included the long and confusing journey to reach a diagnosis, living with the disease, understanding the disease and treatment and desire for continuity of care. A series of subthemes were also identified, including uncertainty of diagnosis, delaying the process, living with "],"journal":["International journal of nursing sciences"],"pagination":["175-180"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC8105533"],"repository":["biostudies-literature"],"pubmed_title":["Lived experiences of the disease journey among patients with idiopathic pulmonary fibrosis."],"pmcid":["PMC8105533"],"pubmed_authors":["Lyu Y","Huang YL","Lin F","Jia Y","Gao F"],"additional_accession":[]},"is_claimable":false,"name":"Lived experiences of the disease journey among patients with idiopathic pulmonary fibrosis.","description":"<h4>Objective</h4>This study aimed to explore the lived experiences of the disease journey and patients' care needs with idiopathic pulmonary fibrosis (IPF).<h4>Methods</h4>Face-to-face semi-structured interviews were conducted with a purposive sampling of IPF patients admitted to the department of respiratory medicine in a tertiary hospital in Beijing. Interview data were analyzed using the thematic analysis method. In the end, 16 patients were interviewed.<h4>Results</h4>Four themes emerged from the qualitative data included the long and confusing journey to reach a diagnosis, living with the disease, understanding the disease and treatment and desire for continuity of care. A series of subthemes were also identified, including uncertainty of diagnosis, delaying the process, living with ","dates":{"release":"2021-01-01T00:00:00Z","publication":"2021 Apr","modification":"2026-07-16T10:29:29.845Z","creation":"2026-07-09T10:51:14.812Z"},"accession":"S-EPMC8105533","cross_references":{"pubmed":["33997131"],"doi":["10.1016/j.ijnss.2021.02.004"]}}