biostudies-literatureUnknown8(2)Lyu YBeijing Hospitals Authority<h4>Objective</h4>This study aimed to explore the lived experiences of the disease journey and patients' care needs with idiopathic pulmonary fibrosis (IPF).<h4>Methods</h4>Face-to-face semi-structured interviews were conducted with a purposive sampling of IPF patients admitted to the department of respiratory medicine in a tertiary hospital in Beijing. Interview data were analyzed using the thematic analysis method. In the end, 16 patients were interviewed.<h4>Results</h4>Four themes emerged from the qualitative data included the long and confusing journey to reach a diagnosis, living with the disease, understanding the disease and treatment and desire for continuity of care. A series of subthemes were also identified, including uncertainty of diagnosis, delaying the process, living with International journal of nursing sciences175-180https://www.ebi.ac.uk/biostudies/studies/S-EPMC8105533biostudies-literatureLived experiences of the disease journey among patients with idiopathic pulmonary fibrosis.PMC8105533Lyu YHuang YLLin FJia YGao FfalseLived experiences of the disease journey among patients with idiopathic pulmonary fibrosis.<h4>Objective</h4>This study aimed to explore the lived experiences of the disease journey and patients' care needs with idiopathic pulmonary fibrosis (IPF).<h4>Methods</h4>Face-to-face semi-structured interviews were conducted with a purposive sampling of IPF patients admitted to the department of respiratory medicine in a tertiary hospital in Beijing. Interview data were analyzed using the thematic analysis method. In the end, 16 patients were interviewed.<h4>Results</h4>Four themes emerged from the qualitative data included the long and confusing journey to reach a diagnosis, living with the disease, understanding the disease and treatment and desire for continuity of care. A series of subthemes were also identified, including uncertainty of diagnosis, delaying the process, living with 2021-01-01T00:00:00Z2021 Apr2026-07-16T10:29:29.845Z2026-07-09T10:51:14.812ZS-EPMC81055333399713110.1016/j.ijnss.2021.02.004