{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"submitter":["Lacy GD"],"funding":["NCATS NIH HHS","NEI NIH HHS","National Institutes of Health"],"pagination":["137-146"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC8184579"],"repository":["biostudies-literature"],"omics_type":["Unknown"],"volume":["225"],"pubmed_abstract":["<h4>Objective</h4>We sought to construct and validate a patient-reported outcome measure for screening and monitoring vision-related anxiety in patients with inherited retinal degenerations.<h4>Design</h4>Item-response theory and graded response modeling to quantitatively validate questionnaire items generated from qualitative interviews and patient feedback.<h4>Methods</h4>Patients at the Kellogg Eye Center (University of Michigan, Ann Arbor, Michigan, USA) with a clinical diagnosis of an inherited retinal degeneration (n = 128) participated in an interviewer-administered questionnaire. The questionnaire consisted of 166 items, 26 of which pertained to concepts of \"worry\" and \"anxiety.\" The subset of vision-related anxiety questions was analyzed by a graded response model using the Cai Me"],"journal":["American journal of ophthalmology"],"pubmed_title":["The Michigan Vision-Related Anxiety Questionnaire: A Psychosocial Outcomes Measure for Inherited Retinal Degenerations."],"pmcid":["PMC8184579"],"funding_grant_id":["TL1 TR002242","K23 EY027848","K23 EY026985","K12 EY022299"],"pubmed_authors":["Santos EP","Fahim AT","Baig N","Yu G","Popova LT","Rakine HY","Abuzaitoun R","Stelmack JA","Jayasundera KT","Branham KH","Swenor BK","Lichter PR","Lacy GD","Ehrlich JR","Abalem MF","Andrews CA","Musch DC","Dagnelie G"],"additional_accession":[]},"is_claimable":false,"name":"The Michigan Vision-Related Anxiety Questionnaire: A Psychosocial Outcomes Measure for Inherited Retinal Degenerations.","description":"<h4>Objective</h4>We sought to construct and validate a patient-reported outcome measure for screening and monitoring vision-related anxiety in patients with inherited retinal degenerations.<h4>Design</h4>Item-response theory and graded response modeling to quantitatively validate questionnaire items generated from qualitative interviews and patient feedback.<h4>Methods</h4>Patients at the Kellogg Eye Center (University of Michigan, Ann Arbor, Michigan, USA) with a clinical diagnosis of an inherited retinal degeneration (n = 128) participated in an interviewer-administered questionnaire. The questionnaire consisted of 166 items, 26 of which pertained to concepts of \"worry\" and \"anxiety.\" The subset of vision-related anxiety questions was analyzed by a graded response model using the Cai Me","dates":{"release":"2021-01-01T00:00:00Z","publication":"2021 May","modification":"2025-04-05T10:03:48.795Z","creation":"2025-04-05T10:03:48.795Z"},"accession":"S-EPMC8184579","cross_references":{"pubmed":["33309692"],"doi":["10.1016/j.ajo.2020.12.001"]}}