{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"submitter":["Amedro P"],"funding":["Centre Hospitalier Régional Universitaire de Montpellier","Direction Générale de l’offre de Soins","Direction Générale de l'offre de Soins","Cardiogen","Fédération Française de Cardiologie"],"pagination":["187"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC8317438"],"repository":["biostudies-literature"],"omics_type":["Unknown"],"volume":["19(1)"],"pubmed_abstract":["<h4>Background</h4>Advances in paediatric cardiology have improved the prognosis of children with inherited cardiac disorders. However, health-related quality of life (QoL) and physical activity have been scarcely analysed in children with inherited cardiac arrhythmia or inherited cardiomyopathy. Moreover, current guidelines on the eligibility of young athletes with inherited cardiac disorders for sports participation mainly rely on expert opinions and remain controversial.<h4>Methods</h4>The QUALIMYORYTHM trial is a multicentre observational controlled study. The main objective is to compare the QoL of children aged 6 to 17 years old with inherited cardiac arrhythmia (long QT syndrome, Brugada syndrome, catecholaminergic polymorphic ventricular tachycardia, or arrhythmogenic right ventric"],"journal":["Health and quality of life outcomes"],"pubmed_title":["Health-related quality of life and physical activity in children with inherited cardiac arrhythmia or inherited cardiomyopathy: the prospective multicentre controlled QUALIMYORYTHM study rationale, design and methods."],"pmcid":["PMC8317438"],"funding_grant_id":["AAP FFC 2019","AOI 2019 young researcher award","2018 Call for proposal","GIRCI-SOHO-APITHEM-2019"],"pubmed_authors":["Requirand A","Calderon J","Boisson A","De La Villeon G","Denjoy-Urbain I","Picot MC","Bonnet D","Matecki S","Dulac Y","Amedro P","Guillaumont S","Souilla L","Probst V","Pasquie JL","Werner O","Lavastre K","Thambo JB","Charron P","Guitarte A","Lacampagne A","Abassi H","Pommier V","Di Filippo S","Delclaux C","Vincenti M","Beyler C","Baruteau AE","Chevalier P"],"additional_accession":[]},"is_claimable":false,"name":"Health-related quality of life and physical activity in children with inherited cardiac arrhythmia or inherited cardiomyopathy: the prospective multicentre controlled QUALIMYORYTHM study rationale, design and methods.","description":"<h4>Background</h4>Advances in paediatric cardiology have improved the prognosis of children with inherited cardiac disorders. However, health-related quality of life (QoL) and physical activity have been scarcely analysed in children with inherited cardiac arrhythmia or inherited cardiomyopathy. Moreover, current guidelines on the eligibility of young athletes with inherited cardiac disorders for sports participation mainly rely on expert opinions and remain controversial.<h4>Methods</h4>The QUALIMYORYTHM trial is a multicentre observational controlled study. The main objective is to compare the QoL of children aged 6 to 17 years old with inherited cardiac arrhythmia (long QT syndrome, Brugada syndrome, catecholaminergic polymorphic ventricular tachycardia, or arrhythmogenic right ventric","dates":{"release":"2021-01-01T00:00:00Z","publication":"2021 Jul","modification":"2025-05-29T20:47:39.961Z","creation":"2022-02-11T02:03:31.43Z"},"accession":"S-EPMC8317438","cross_references":{"pubmed":["34321045"],"doi":["10.1186/s12955-021-01825-6"]}}