{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"submitter":["Leroy-Melamed M"],"funding":["Agency for Healthcare Research and Quality","AHRQ HHS","Cystic Fibrosis Foundation","National Institute of General Medical Sciences","NIGMS NIH HHS"],"pagination":["970-975"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC8612941"],"repository":["biostudies-literature"],"omics_type":["Unknown"],"volume":["69(6)"],"pubmed_abstract":["<h4>Purpose</h4>With improvements in life expectancy, adolescents and young adults (AYAs) with sickle cell disease (SCD) increasingly face sexual and reproductive health (SRH) concerns. As subspecialists often serve as primary care providers for those with chronic disease, this study examines pediatric SCD providers' practices and attitudes related to SRH of AYA women with SCD.<h4>Methods</h4>We developed an adapted survey to identify SCD provider attitudes and practices in addressing menses, sexual activity, contraception, and pregnancy for their female patients. We electronically distributed this survey to the American Society of Pediatric Hematology/Oncology SCD interest group. We used descriptive statistics to analyze results.<h4>Results</h4>A total of 78 pediatric SCD providers comple"],"journal":["The Journal of adolescent health : official publication of the Society for Adolescent Medicine"],"pubmed_title":["Provider Attitudes, Preferences, and Practices Regarding Sexual and Reproductive Health for Adolescents and Young Adults With Sickle Cell Disease."],"pmcid":["PMC8612941"],"funding_grant_id":["K12 HS026390","T32 GM008425","T32GM008425"],"pubmed_authors":["Leroy-Melamed M","Jacob S","Kazmerski TM","Shew ML"],"additional_accession":[]},"is_claimable":false,"name":"Provider Attitudes, Preferences, and Practices Regarding Sexual and Reproductive Health for Adolescents and Young Adults With Sickle Cell Disease.","description":"<h4>Purpose</h4>With improvements in life expectancy, adolescents and young adults (AYAs) with sickle cell disease (SCD) increasingly face sexual and reproductive health (SRH) concerns. As subspecialists often serve as primary care providers for those with chronic disease, this study examines pediatric SCD providers' practices and attitudes related to SRH of AYA women with SCD.<h4>Methods</h4>We developed an adapted survey to identify SCD provider attitudes and practices in addressing menses, sexual activity, contraception, and pregnancy for their female patients. We electronically distributed this survey to the American Society of Pediatric Hematology/Oncology SCD interest group. We used descriptive statistics to analyze results.<h4>Results</h4>A total of 78 pediatric SCD providers comple","dates":{"release":"2021-01-01T00:00:00Z","publication":"2021 Dec","modification":"2025-04-05T09:43:34.114Z","creation":"2025-04-05T09:43:34.114Z"},"accession":"S-EPMC8612941","cross_references":{"pubmed":["34294508"],"doi":["10.1016/j.jadohealth.2021.06.008"]}}