biostudies-literatureUnknown11(12)Mimmo L<h4>Introduction</h4>Children and young people with intellectual disability represent one of the most vulnerable groups in healthcare, yet they remain under-represented in projects to design, develop and/or improve healthcare service delivery. Increasingly, healthcare services are using various codesign and coproduction methodologies to engage children and young people in service delivery improvements.<h4>Methods and analysis</h4>This study employs an inclusive approach to the study design and execution, including two co-researchers who are young people with intellectual disability on the project team. We will follow an adapted experience-based co-design methodology to enable children and young people with intellectual disability to participate fully in the co-design of a prototype tool for eliciting patient experience data from children and young people with intellectual disability in hospital.<h4>Ethics and dissemination</h4>This study was granted ethical approval on 1 February 2021 by the Sydney Children's Hospitals Network Human Research Ethics Committee, reference number 2020/ETH02898. Dissemination plan includes publications, doctoral thesis chapter, educational videos. A summary of findings will be shared with all participants and presented at the organisation quality and safety committee.BMJ opene050973https://www.ebi.ac.uk/biostudies/studies/S-EPMC8650477biostudies-literatureCodesigning patient experience measures for and with children and young people with intellectual disability: a study protocol.PMC8650477Mimmo Lvan Hoek MADHarrison RWoolfenden SPhillips MTAKTravaglia JStrnadova IfalseCodesigning patient experience measures for and with children and young people with intellectual disability: a study protocol.<h4>Introduction</h4>Children and young people with intellectual disability represent one of the most vulnerable groups in healthcare, yet they remain under-represented in projects to design, develop and/or improve healthcare service delivery. Increasingly, healthcare services are using various codesign and coproduction methodologies to engage children and young people in service delivery improvements.<h4>Methods and analysis</h4>This study employs an inclusive approach to the study design and execution, including two co-researchers who are young people with intellectual disability on the project team. We will follow an adapted experience-based co-design methodology to enable children and young people with intellectual disability to participate fully in the co-design of a prototype tool for eliciting patient experience data from children and young people with intellectual disability in hospital.<h4>Ethics and dissemination</h4>This study was granted ethical approval on 1 February 2021 by the Sydney Children's Hospitals Network Human Research Ethics Committee, reference number 2020/ETH02898. Dissemination plan includes publications, doctoral thesis chapter, educational videos. A summary of findings will be shared with all participants and presented at the organisation quality and safety committee.2021-01-01T00:00:00Z2021 Dec2024-02-15T14:39:26.924Z2022-02-11T13:56:44.179ZS-EPMC86504773487299910.1136/bmjopen-2021-050973