{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"submitter":["Beukenhorst AL"],"funding":["NIDCD NIH HHS"],"pagination":["e31877"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC8857693"],"repository":["biostudies-literature"],"omics_type":["Unknown"],"volume":["10(2)"],"pubmed_abstract":["<h4>Background</h4>Smartphone studies provide an opportunity to collect frequent data at a low burden on participants. Therefore, smartphones may enable data collection from people with progressive neurodegenerative diseases such as amyotrophic lateral sclerosis at high frequencies for a long duration. However, the progressive decline in patients' cognitive and functional abilities could also hamper the feasibility of collecting patient-reported outcomes, audio recordings, and location data in the long term.<h4>Objective</h4>The aim of this study is to investigate the completeness of survey data, audio recordings, and passively collected location data from 3 smartphone-based studies of people with amyotrophic lateral sclerosis.<h4>Methods</h4>We analyzed data completeness in three studies:"],"journal":["JMIR mHealth and uHealth"],"pubmed_title":["Using Smartphones to Reduce Research Burden in a Neurodegenerative Population and Assessing Participant Adherence: A Randomized Clinical Trial and Two Observational Studies."],"pmcid":["PMC8857693"],"funding_grant_id":["R15 DC018944"],"pubmed_authors":["Miller TM","Tay A","Paganoni S","Connaghan KP","Collins E","Keegan M","Chan J","Burke KM","Beukenhorst AL","Berry JD","Scheier Z","Onnela JP"],"additional_accession":[]},"is_claimable":false,"name":"Using Smartphones to Reduce Research Burden in a Neurodegenerative Population and Assessing Participant Adherence: A Randomized Clinical Trial and Two Observational Studies.","description":"<h4>Background</h4>Smartphone studies provide an opportunity to collect frequent data at a low burden on participants. Therefore, smartphones may enable data collection from people with progressive neurodegenerative diseases such as amyotrophic lateral sclerosis at high frequencies for a long duration. However, the progressive decline in patients' cognitive and functional abilities could also hamper the feasibility of collecting patient-reported outcomes, audio recordings, and location data in the long term.<h4>Objective</h4>The aim of this study is to investigate the completeness of survey data, audio recordings, and passively collected location data from 3 smartphone-based studies of people with amyotrophic lateral sclerosis.<h4>Methods</h4>We analyzed data completeness in three studies:","dates":{"release":"2022-01-01T00:00:00Z","publication":"2022 Feb","modification":"2026-06-01T02:06:19.462Z","creation":"2024-10-17T20:09:53.922Z"},"accession":"S-EPMC8857693","cross_references":{"pubmed":["35119373"],"doi":["10.2196/31877"]}}