biostudies-literatureBeukenhorst ALNIDCD NIH HHSe31877https://www.ebi.ac.uk/biostudies/studies/S-EPMC8857693biostudies-literatureUnknown10(2)<h4>Background</h4>Smartphone studies provide an opportunity to collect frequent data at a low burden on participants. Therefore, smartphones may enable data collection from people with progressive neurodegenerative diseases such as amyotrophic lateral sclerosis at high frequencies for a long duration. However, the progressive decline in patients' cognitive and functional abilities could also hamper the feasibility of collecting patient-reported outcomes, audio recordings, and location data in the long term.<h4>Objective</h4>The aim of this study is to investigate the completeness of survey data, audio recordings, and passively collected location data from 3 smartphone-based studies of people with amyotrophic lateral sclerosis.<h4>Methods</h4>We analyzed data completeness in three studies:JMIR mHealth and uHealthUsing Smartphones to Reduce Research Burden in a Neurodegenerative Population and Assessing Participant Adherence: A Randomized Clinical Trial and Two Observational Studies.PMC8857693R15 DC018944Miller TMTay APaganoni SConnaghan KPCollins EKeegan MChan JBurke KMBeukenhorst ALBerry JDScheier ZOnnela JPfalseUsing Smartphones to Reduce Research Burden in a Neurodegenerative Population and Assessing Participant Adherence: A Randomized Clinical Trial and Two Observational Studies.<h4>Background</h4>Smartphone studies provide an opportunity to collect frequent data at a low burden on participants. Therefore, smartphones may enable data collection from people with progressive neurodegenerative diseases such as amyotrophic lateral sclerosis at high frequencies for a long duration. However, the progressive decline in patients' cognitive and functional abilities could also hamper the feasibility of collecting patient-reported outcomes, audio recordings, and location data in the long term.<h4>Objective</h4>The aim of this study is to investigate the completeness of survey data, audio recordings, and passively collected location data from 3 smartphone-based studies of people with amyotrophic lateral sclerosis.<h4>Methods</h4>We analyzed data completeness in three studies:2022-01-01T00:00:00Z2022 Feb2026-06-01T02:06:19.462Z2024-10-17T20:09:53.922ZS-EPMC88576933511937310.2196/31877