{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"submitter":["Toromo JJ"],"funding":["NICHD NIH HHS","NIAID NIH HHS"],"pagination":["1122"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC9167528"],"repository":["biostudies-literature"],"omics_type":["Unknown"],"volume":["22(1)"],"pubmed_abstract":["<h4>Introduction</h4>Adolescents living with HIV (ALHIV, ages 10-19) experience complex barriers to care engagement. Challenges surrounding HIV status disclosure or non-disclosure to adolescents may contribute to adolescent disengagement from HIV care or non-adherence to ART. We performed a qualitative study to investigate the contribution of disclosure challenges to adolescent disengagement from HIV care.<h4>Methods</h4>This was a qualitative study performed with disengaged ALHIV and their caregivers, and with healthcare workers (HCW) in the Academic Model Providing Access to Healthcare (AMPATH) program in western Kenya. Inclusion criteria for ALHIV were ≥1 visit within the 18 months prior to data collection at one of two clinical sites and nonattendance ≥60 days following their last sche"],"journal":["BMC public health"],"pubmed_title":["\"I have never talked to anyone to free my mind\" - challenges surrounding status disclosure to adolescents contribute to their disengagement from HIV care: a qualitative study in western Kenya."],"pmcid":["PMC9167528"],"funding_grant_id":["U01 AI069911","L40 HD103261","K23 HD095778"],"pubmed_authors":["Kantor R","Nyandiko WM","Bakari S","Apondi E","Elul B","Enane LA","Vreeman RC","Omollo M","Fortenberry JD","Aluoch J","Toromo JJ","Wools-Kaloustian K"],"additional_accession":[]},"is_claimable":false,"name":"\"I have never talked to anyone to free my mind\" - challenges surrounding status disclosure to adolescents contribute to their disengagement from HIV care: a qualitative study in western Kenya.","description":"<h4>Introduction</h4>Adolescents living with HIV (ALHIV, ages 10-19) experience complex barriers to care engagement. Challenges surrounding HIV status disclosure or non-disclosure to adolescents may contribute to adolescent disengagement from HIV care or non-adherence to ART. We performed a qualitative study to investigate the contribution of disclosure challenges to adolescent disengagement from HIV care.<h4>Methods</h4>This was a qualitative study performed with disengaged ALHIV and their caregivers, and with healthcare workers (HCW) in the Academic Model Providing Access to Healthcare (AMPATH) program in western Kenya. Inclusion criteria for ALHIV were ≥1 visit within the 18 months prior to data collection at one of two clinical sites and nonattendance ≥60 days following their last sche","dates":{"release":"2022-01-01T00:00:00Z","publication":"2022 Jun","modification":"2025-04-04T12:41:22.37Z","creation":"2024-11-05T20:41:39.343Z"},"accession":"S-EPMC9167528","cross_references":{"pubmed":["35658924"],"doi":["10.1186/s12889-022-13519-9"]}}