{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"submitter":["Schokman A"],"funding":["Australian Government","Australian Research Council"],"pagination":["zsac156"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC9548672"],"repository":["biostudies-literature"],"omics_type":["Unknown"],"volume":["45(10)"],"pubmed_abstract":["<h4>Study objectives</h4>To systematically determine subjective and objective outcome measures used to measure the efficacy of narcolepsy interventions in randomized controlled trials (RCTs) in adults and children and assess psychometric properties of patient-reported outcome measures (PROMs) used.<h4>Methods</h4>We searched bibliographical databases and clinical trial registries for narcolepsy RCTs and extracted objective and subjective outcome measures. If PROMs were used, we searched for psychometric studies conducted in a narcolepsy population using bibliographical databases and appraised using Consensus-based Standards for the Selection of Health Measurement Instruments (COSMIN) guidelines.<h4>Results</h4>In total, 80 different outcome measures were used across 100 RCTs. Epworth Sleep"],"journal":["Sleep"],"pubmed_title":["Evaluation of psychometric properties of patient-reported outcome measures frequently used in narcolepsy randomized controlled trials: a systematic review."],"pmcid":["PMC9548672"],"funding_grant_id":["ID CE200100025"],"pubmed_authors":["Cheung JMY","Glozier N","Bin YS","Kairaitis K","Naehrig D","Schokman A"],"additional_accession":[]},"is_claimable":false,"name":"Evaluation of psychometric properties of patient-reported outcome measures frequently used in narcolepsy randomized controlled trials: a systematic review.","description":"<h4>Study objectives</h4>To systematically determine subjective and objective outcome measures used to measure the efficacy of narcolepsy interventions in randomized controlled trials (RCTs) in adults and children and assess psychometric properties of patient-reported outcome measures (PROMs) used.<h4>Methods</h4>We searched bibliographical databases and clinical trial registries for narcolepsy RCTs and extracted objective and subjective outcome measures. If PROMs were used, we searched for psychometric studies conducted in a narcolepsy population using bibliographical databases and appraised using Consensus-based Standards for the Selection of Health Measurement Instruments (COSMIN) guidelines.<h4>Results</h4>In total, 80 different outcome measures were used across 100 RCTs. Epworth Sleep","dates":{"release":"2022-01-01T00:00:00Z","publication":"2022 Oct","modification":"2026-04-12T19:27:36.072Z","creation":"2025-04-05T11:37:59.886Z"},"accession":"S-EPMC9548672","cross_references":{"pubmed":["35797589"],"doi":["10.1093/sleep/zsac156"]}}