{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"omics_type":["Unknown"],"volume":["22(1)"],"submitter":["Lymphoma and Related Diseases Registry Investigators"],"pubmed_abstract":["<h4>Background</h4>Lymphoma is a malignancy of lymphocytes and lymphoid tissues comprising a heterogeneous group of diseases, with up to 80 entities now described. Lymphoma is the 6<sup>th</sup> most common cancer in Australia, affecting patients of all ages, with rising incidence rates. With the proliferation of efficacious novel agents, therapeutic strategies are increasingly diverse and survival is improving. There is a clear need for contemporary robust and detailed data on diagnostic, investigational and management strategies for this disease in Australia, New Zealand and worldwide, to inform and benchmark local and international standards of care. Clinical quality registries can provide these data, and support development of strategies to address variations in management, including s"],"journal":["BMC medical research methodology"],"pagination":["266"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC9549605"],"repository":["biostudies-literature"],"pubmed_title":["Improving outcomes for patients with lymphoma: design and development of the Australian and New Zealand Lymphoma and Related Diseases Registry."],"pmcid":["PMC9549605"],"pubmed_authors":["Opat S","St George G","Badoux X","Casan J","Williams J","Cushion T","Giri P","Tedjaseputra A","Brown C","Morison J","Ku M","Thu C","Keane C","Berkahn L","Wellard C","Kearney D","Cochrane T","Jain S","Chong G","Gandhi MK","Wood EM","Rowsell L","Wight J","Johnston A","Kuss B","Parker A","Ellis D","Lymphoma and Related Diseases Registry Investigators","Hawkes EA","Mutsando H","Jessup P","Hitchins S","Armytage T","Birch S","Narayana M","Lade S","Norris D","Cull G","Long E","Anderson MA","Harvey Y","Parry J","Chen FP","Lee K","Juneja S","Trotman J","Lee D","Dickinson M","Nath L","Zheng M","Marlton P","Morey A","McQuilten ZK","Barraclough A","Carradice D","Tam C","Ratnasingam S","Hamad N","Prince HM","Chung E","Waters N","Talaulikar D","Morgan S","Mulligan SP","Cheah C","Kumar B","Leslie C"],"additional_accession":[]},"is_claimable":false,"name":"Improving outcomes for patients with lymphoma: design and development of the Australian and New Zealand Lymphoma and Related Diseases Registry.","description":"<h4>Background</h4>Lymphoma is a malignancy of lymphocytes and lymphoid tissues comprising a heterogeneous group of diseases, with up to 80 entities now described. Lymphoma is the 6<sup>th</sup> most common cancer in Australia, affecting patients of all ages, with rising incidence rates. With the proliferation of efficacious novel agents, therapeutic strategies are increasingly diverse and survival is improving. There is a clear need for contemporary robust and detailed data on diagnostic, investigational and management strategies for this disease in Australia, New Zealand and worldwide, to inform and benchmark local and international standards of care. Clinical quality registries can provide these data, and support development of strategies to address variations in management, including s","dates":{"release":"2022-01-01T00:00:00Z","publication":"2022 Oct","modification":"2025-06-01T02:32:12.994Z","creation":"2024-11-15T07:00:39.178Z"},"accession":"S-EPMC9549605","cross_references":{"pubmed":["36217114"],"doi":["10.1186/s12874-022-01728-0"]}}