{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"omics_type":["Unknown"],"volume":["2(1)"],"submitter":["Schofield D"],"pubmed_abstract":["<h4>Purpose</h4>To evaluate the impact of inherited retinal diseases (IRDs) on quality of life (QoL) using multiattributable health utilities derived from primary patient data.<h4>Design</h4>Cross-sectional observational study.<h4>Participants</h4>Seventy adult patients (mean age, 42.7 years) with IRD recruited from state-wide services in Australia.<h4>Methods</h4>Health utility values were calculated from the Assessment of Quality of Life 8-Dimension (AQoL-8D). Linear regressions were used to analyze the relationship between the 25-item and 39-item National Eye Institute Visual Function Questionnaires (NEI-VFQ-25 and NEI-VFQ-39, respectively) and health utilities from the AQoL-8D.<h4>Main outcome measures</h4>The AQoL-8D utility values were compared between the IRD cohort and population n"],"journal":["Ophthalmology science"],"pagination":["100106"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC9560564"],"repository":["biostudies-literature"],"pubmed_title":["Patient-Reported Health-Related Quality of Life in Individuals with Inherited Retinal Diseases."],"pmcid":["PMC9560564"],"pubmed_authors":["Schofield D","Ma A","Grigg J","West S","Jamieson RV","Shrestha R","Tan O","Kraindler J","Jelovic D"],"additional_accession":[]},"is_claimable":false,"name":"Patient-Reported Health-Related Quality of Life in Individuals with Inherited Retinal Diseases.","description":"<h4>Purpose</h4>To evaluate the impact of inherited retinal diseases (IRDs) on quality of life (QoL) using multiattributable health utilities derived from primary patient data.<h4>Design</h4>Cross-sectional observational study.<h4>Participants</h4>Seventy adult patients (mean age, 42.7 years) with IRD recruited from state-wide services in Australia.<h4>Methods</h4>Health utility values were calculated from the Assessment of Quality of Life 8-Dimension (AQoL-8D). Linear regressions were used to analyze the relationship between the 25-item and 39-item National Eye Institute Visual Function Questionnaires (NEI-VFQ-25 and NEI-VFQ-39, respectively) and health utilities from the AQoL-8D.<h4>Main outcome measures</h4>The AQoL-8D utility values were compared between the IRD cohort and population n","dates":{"release":"2022-01-01T00:00:00Z","publication":"2022 Mar","modification":"2025-04-04T23:02:23.123Z","creation":"2025-04-04T23:02:23.123Z"},"accession":"S-EPMC9560564","cross_references":{"pubmed":["36246188"],"doi":["10.1016/j.xops.2021.100106"]}}