{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"submitter":["Smit AK"],"funding":["National Health and Medical Research Council","University of Sydney"],"pagination":["1581"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC9605561"],"repository":["biostudies-literature"],"omics_type":["Unknown"],"volume":["12(10)"],"pubmed_abstract":["Personalized polygenic risk information may be used to guide risk-based melanoma prevention and early detection at a population scale, but research on communicating this information is limited. This mixed-methods study aimed to assess the acceptability of a genetic counselor (GC) phone call in communicating polygenic risk information in the Melanoma Genomics Managing Your Risk randomized controlled trial. Participants (<i>n</i> = 509) received personalized melanoma polygenic risk information, an educational booklet on melanoma prevention, and a GC phone call, which was audio-recorded. Participants completed the Genetic Counseling Satisfaction Survey 1-month after receiving their risk information (<i>n</i> = 346). A subgroup took part in a qualitative interview post-study completion (<i>n</"],"journal":["Journal of personalized medicine"],"pubmed_title":["Communicating Personal Melanoma Polygenic Risk Information: Participants' Experiences of Genetic Counseling in a Community-Based Study."],"pmcid":["PMC9605561"],"funding_grant_id":["AKS received a Research Training Program (RTP) Stipend Scholarship and a Merit Top Up Scholarship from the University of Sydney, and a Melanoma Institute Australia Postgraduate Research Scholarship","project grant (1129822)","AEC was funded by fellowships from the NHMRC (1147843 and 2008454)"],"pubmed_authors":["Turbitt E","McGovern M","Cust AE","Espinoza D","Smit AK","On Behalf Of The Managing Your Risk Study Group","Kirk J","Fenton GL","Innes JS","Limb S"],"additional_accession":[]},"is_claimable":false,"name":"Communicating Personal Melanoma Polygenic Risk Information: Participants' Experiences of Genetic Counseling in a Community-Based Study.","description":"Personalized polygenic risk information may be used to guide risk-based melanoma prevention and early detection at a population scale, but research on communicating this information is limited. This mixed-methods study aimed to assess the acceptability of a genetic counselor (GC) phone call in communicating polygenic risk information in the Melanoma Genomics Managing Your Risk randomized controlled trial. Participants (<i>n</i> = 509) received personalized melanoma polygenic risk information, an educational booklet on melanoma prevention, and a GC phone call, which was audio-recorded. Participants completed the Genetic Counseling Satisfaction Survey 1-month after receiving their risk information (<i>n</i> = 346). A subgroup took part in a qualitative interview post-study completion (<i>n</","dates":{"release":"2022-01-01T00:00:00Z","publication":"2022 Sep","modification":"2025-04-18T21:20:54.303Z","creation":"2025-04-07T09:14:42.185Z"},"accession":"S-EPMC9605561","cross_references":{"pubmed":["36294720"],"doi":["10.3390/jpm12101581"]}}