biostudies-literatureRutter MMNICHD NIH HHS227-235https://www.ebi.ac.uk/biostudies/studies/S-EPMC9708931biostudies-literatureUnknown16(4)<h4>Introduction</h4>People with differences of sex development (DSD) and their families need education about these conditions while receiving emotional and peer support to participate in shared decision-making, reduce social isolation, and optimize physical and psychosocial outcomes. Barriers to education and support include limited knowledge and awareness by healthcare providers, tension among patient and medical communities, varied quality of educational resources, and the sensitive nature of DSD. We aimed to create an electronic repository of vetted quality online resources about DSD.<h4>Methods</h4>The electronic resource repository (e-RR) was a collaboration between affected individuals and advocates and healthcare providers in the DSD-Translational Research Network (DSD-TRN), an NIHSexual development : genetics, molecular biology, evolution, endocrinology, embryology, and pathology of sex determination and differentiationCreation of an Electronic Resource Repository for Differences of Sex Development (DSD): Collaboration Between Advocates and Clinicians in the DSD-Translational Research Network.PMC9708931R01 HD068138R01 HD093450von Klan AWeidler EMBarrett MIndig GGreen JRutter MMMuscarella MSandberg DEDSD-Translational Research NetworkKennedy KfalseCreation of an Electronic Resource Repository for Differences of Sex Development (DSD): Collaboration Between Advocates and Clinicians in the DSD-Translational Research Network.<h4>Introduction</h4>People with differences of sex development (DSD) and their families need education about these conditions while receiving emotional and peer support to participate in shared decision-making, reduce social isolation, and optimize physical and psychosocial outcomes. Barriers to education and support include limited knowledge and awareness by healthcare providers, tension among patient and medical communities, varied quality of educational resources, and the sensitive nature of DSD. We aimed to create an electronic repository of vetted quality online resources about DSD.<h4>Methods</h4>The electronic resource repository (e-RR) was a collaboration between affected individuals and advocates and healthcare providers in the DSD-Translational Research Network (DSD-TRN), an NIH2022-01-01T00:00:00Z20222025-04-04T21:08:46.927Z2025-04-04T21:08:46.927ZS-EPMC97089313563640610.1159/000524629