{"database":"biostudies-literature","file_versions":[],"scores":null,"additional":{"omics_type":["Unknown"],"volume":["31(6)"],"submitter":["Verhoef MJ"],"pubmed_abstract":["<h4>Objective</h4>The objective of this study is to study (1) the relationship between patient-reported symptom burden and information needs in hospital-based palliative care and (2) differences in patient-reported needs during the disease trajectory.<h4>Methods</h4>Observational study: patient-reported symptom burden and information needs were collected via a conversation guide comprising assessment scales for 12 symptoms (0-10), the question which symptom has priority to be solved and a question prompt list on 75 palliative care-related items (35 topics, 40 questions). Non-parametric tests assessed associations.<h4>Results</h4>Conversation guides were used by 266 patients. Median age was 65 years (IQ-range, 57-72), 49% were male and 96% had cancer. Patients reported highest burden for Fatigue (median = 7) and Loss of appetite (median = 6) and prioritised Pain (26%), Fatigue (9%) and Shortness of breath (9%). Patients wanted information about 1-38 (median = 14) items, mostly Fatigue (68%), Possibilities to manage future symptoms (68%) and Possible future symptoms (67%). Patients also wanted information about symptoms for which they reported low burden. Patients in the symptom-directed phase needed more information about hospice care.<h4>Conclusion</h4>Symptom burden and information needs are related. Patients often also want information about non-prioritised symptoms and other palliative care domains. Tailored information-provision includes inviting patients to also discuss topics they did not consider themselves."],"journal":["European journal of cancer care"],"pagination":["e13708"],"full_dataset_link":["https://www.ebi.ac.uk/biostudies/studies/S-EPMC9788071"],"repository":["biostudies-literature"],"pubmed_title":["Assessment of patient symptom burden and information needs helps tailoring palliative care consultations: An observational study."],"pmcid":["PMC9788071"],"pubmed_authors":["Horeweg N","Pieterse AH","van der Linden YM","Verhoef MJ","van der Steen JT","Valkenburg AC","de Nijs EJM","Sweep B"],"additional_accession":[]},"is_claimable":false,"name":"Assessment of patient symptom burden and information needs helps tailoring palliative care consultations: An observational study.","description":"<h4>Objective</h4>The objective of this study is to study (1) the relationship between patient-reported symptom burden and information needs in hospital-based palliative care and (2) differences in patient-reported needs during the disease trajectory.<h4>Methods</h4>Observational study: patient-reported symptom burden and information needs were collected via a conversation guide comprising assessment scales for 12 symptoms (0-10), the question which symptom has priority to be solved and a question prompt list on 75 palliative care-related items (35 topics, 40 questions). Non-parametric tests assessed associations.<h4>Results</h4>Conversation guides were used by 266 patients. Median age was 65 years (IQ-range, 57-72), 49% were male and 96% had cancer. Patients reported highest burden for Fatigue (median = 7) and Loss of appetite (median = 6) and prioritised Pain (26%), Fatigue (9%) and Shortness of breath (9%). Patients wanted information about 1-38 (median = 14) items, mostly Fatigue (68%), Possibilities to manage future symptoms (68%) and Possible future symptoms (67%). Patients also wanted information about symptoms for which they reported low burden. Patients in the symptom-directed phase needed more information about hospice care.<h4>Conclusion</h4>Symptom burden and information needs are related. Patients often also want information about non-prioritised symptoms and other palliative care domains. Tailored information-provision includes inviting patients to also discuss topics they did not consider themselves.","dates":{"release":"2022-01-01T00:00:00Z","publication":"2022 Nov","modification":"2024-11-19T16:56:40.964Z","creation":"2024-11-19T16:56:40.964Z"},"accession":"S-EPMC9788071","cross_references":{"pubmed":["36151895"],"doi":["10.1111/ecc.13708"]}}