biostudies-literatureUnknown43(1)Israni M<h4>Background</h4>Due to the absence of curative treatments for inborn errors of immunity (IEI), children born with IEI require long-term follow-up for disease manifestations and related complications that occur over the lifespan. Effective transition from pediatric to adult services is known to significantly improve adherence to treatment and long-term outcomes. It is currently not known what transition services are available for young people with IEI in Europe.<h4>Objective</h4>To understand the prevalence and practice of transition services in Europe for young people with IEI, encompassing both primary immunodeficiencies (PID) and systemic autoinflammatory disorders (AID).<h4>Methods</h4>A survey was generated by the European Reference Network on immunodeficiency, autoinflammatory, andJournal of clinical immunology206-216https://www.ebi.ac.uk/biostudies/studies/S-EPMC9840587biostudies-literatureCurrent Transition Practice for Primary Immunodeficiencies and Autoinflammatory Diseases in Europe: a RITA-ERN Survey.PMC9840587Carreras CMcCann LAlsina LWouters CRitterbusch HDalm VCarrabba MBurns SOBarzaghi FSkeffington SHague HAvramovic MZMcDermott ENicholson BCarne EIsrani MKelecic JSanchez-Manubens JInsalaco APlebani Avan Laar JAMHayward GNeth ORITA-ERN Transition Working Group ConsortiumMoschese VSoler-Palacin PKorganow ASOgunjimi BSeoane Reula MEArkwright PDAalto KBrogan PCattalini MEkwall OWulffraat NMvan der Werff Ten Bosch JEFaust SNCanessa CRossi-Semerano LGuffroy AGennery ARNordin JFingerhutova SMendez-Echevarria ACimaz RAnton JMahlaoui NMeyts ILachmann HObici LVillar CBrodszki OMarques LHerlin TGilliaux ORimmer RRiordan ACampbell MBerg SDellepiane RMWarnatz KSeppanen Mikko RJDevlin LAGonzales-Granado LISolis LAmin TSediva AJelusic MGoffin LSantamaria MfalseCurrent Transition Practice for Primary Immunodeficiencies and Autoinflammatory Diseases in Europe: a RITA-ERN Survey.<h4>Background</h4>Due to the absence of curative treatments for inborn errors of immunity (IEI), children born with IEI require long-term follow-up for disease manifestations and related complications that occur over the lifespan. Effective transition from pediatric to adult services is known to significantly improve adherence to treatment and long-term outcomes. It is currently not known what transition services are available for young people with IEI in Europe.<h4>Objective</h4>To understand the prevalence and practice of transition services in Europe for young people with IEI, encompassing both primary immunodeficiencies (PID) and systemic autoinflammatory disorders (AID).<h4>Methods</h4>A survey was generated by the European Reference Network on immunodeficiency, autoinflammatory, and2023-01-01T00:00:00Z2023 Jan2025-04-22T03:59:02.23Z2025-04-05T20:53:45.13ZS-EPMC98405873622299910.1007/s10875-022-01345-y