biostudies-literatureVibert BNIMH NIH HHSNCI NIH HHSCIHR7https://www.ebi.ac.uk/biostudies/studies/S-EPMC9928142biostudies-literatureUnknown14(1)<h4>Background</h4>Heterogeneous mental health outcomes during the COVID-19 pandemic are documented in the general population. Such heterogeneity has not been systematically assessed in youth with autism spectrum disorder (ASD) and related neurodevelopmental disorders (NDD). To identify distinct patterns of the pandemic impact and their predictors in ASD/NDD youth, we focused on pandemic-related changes in symptoms and access to services.<h4>Methods</h4>Using a naturalistic observational design, we assessed parent responses on the Coronavirus Health and Impact Survey Initiative (CRISIS) Adapted For Autism and Related neurodevelopmental conditions (AFAR). Cross-sectional AFAR data were aggregated across 14 European and North American sites yielding a clinically well-characterized sample of Molecular autismCRISIS AFAR: an international collaborative study of the impact of the COVID-19 pandemic on mental health and service access in youth with autism and neurodevelopmental conditions.PMC9928142173092P30 CA008748PJT-159462R01 MH105506R01 MH115363Mazzone LTamon HCrosbie JAnagnostou EMargari LSaito MMerikangas KSiracusano MBoi JMonga SKim SHDonno FDi Martino ATachibana YCostantino AVitiello BPervanidou PVibert BNakajima SGabellone AFujino JNicolson RMarzulli LNoda YTancredi RBravaccio CBirken CSNarzisi ASegura PBrentani HMasi GDavico CKorczak DJKim HCarta ACanevini PMcGrath JGeorgiades SBishop SLCost KTMilham MPAlexander LThurm ATakahashi RMorosini PPortolese JSchwartz INowell KStroud JTakahashi NZuddas AKanne SAoki YCharach ACravo EASimhal AKKim YSKawashima MLeventhal BHirota TGallagher LKelley ESotgiu SGeyer CTLai MCSumiya FPolizzi MNikolaidis ARiccio MPfalseCRISIS AFAR: an international collaborative study of the impact of the COVID-19 pandemic on mental health and service access in youth with autism and neurodevelopmental conditions.<h4>Background</h4>Heterogeneous mental health outcomes during the COVID-19 pandemic are documented in the general population. Such heterogeneity has not been systematically assessed in youth with autism spectrum disorder (ASD) and related neurodevelopmental disorders (NDD). To identify distinct patterns of the pandemic impact and their predictors in ASD/NDD youth, we focused on pandemic-related changes in symptoms and access to services.<h4>Methods</h4>Using a naturalistic observational design, we assessed parent responses on the Coronavirus Health and Impact Survey Initiative (CRISIS) Adapted For Autism and Related neurodevelopmental conditions (AFAR). Cross-sectional AFAR data were aggregated across 14 European and North American sites yielding a clinically well-characterized sample of 2023-01-01T00:00:00Z2023 Feb2025-04-22T18:31:00.525Z2024-10-16T19:11:09.359ZS-EPMC99281423678858310.1186/s13229-022-00536-z