Supporting the parent-to-child transfer of self-management responsibility for chronic kidney disease: A qualitative study.

ABSTRACT:

Introduction

As children with long-term conditions (LTCs) mature, they are usually expected to assume responsibility from their parents for self-management of their condition. Little is known about what supports families with this handover of responsibility, including the role of healthcare professionals (HCPs). This study aimed to explore what supports young people with chronic kidney disease (CKD) to assume self-management responsibility and parents to relinquish control.

Methods

A qualitative study, using a grounded theory approach was conducted. Individual and dyadic interviews and focus groups were carried out with 16 young people aged 13-17 years old with CKD, 13 parents, and 20 HCPs. Participants were recruited from two UK children's renal units.

Findings

Build

SUBMITTER: Nightingale R 

PROVIDER: S-EPMC10010075 | biostudies-literature | 2023 Apr

REPOSITORIES: biostudies-literature