'To me, it's ones and zeros, but in reality that one is death': A qualitative study exploring researchers' experience of involving and engaging seldom-heard communities in big data research.

ABSTRACT:

Background

Big data research requires public support. It has been argued that this can be achieved by public involvement and engagement to ensure that public views are at the centre of research projects. Researchers should aim to include diverse communities, including seldom-heard voices, to ensure that a range of voices are heard and that research is meaningful to them.

Objective

We explored how researchers involve and engage seldom-heard communities around big data research.

Methods

This is a qualitative study. Researchers who had experience of involving or engaging seldom-heard communities in big data research were recruited. They were based in England (n = 5), Scotland (n = 4), Belgium (n = 2) and Canada (n = 1). Twelve semistructured interviews were conducted on

SUBMITTER: Teodorowski P 

PROVIDER: S-EPMC10010102 | biostudies-literature | 2023 Apr

REPOSITORIES: biostudies-literature