Burden of Treatments for Respiratory Complications in Extremely Premature Infants: Interviews with Caregivers.

ABSTRACT:

Introduction

Extremely premature (EP) infants (<28 weeks gestational age) with respiratory conditions after discharge from the neonatal intensive care unit (NICU) impose a significant burden on caregivers. This study explored caregiver burden post-NICU discharge and perceptions of meaningful change in infant chronic respiratory morbidity.

Methods

Adult primary caregivers of EP infants 3-14 months corrected age were recruited through patient advocacy organizations or hospital centers in the USA, Northern Ireland, Germany, and Japan and interviewed by phone. Interviews explored caregiver experiences with infants with respiratory conditions, associated treatment burden, and meaningful change in infant respiratory morbidity as measured by treatment use. Qualitative analysis of i

SUBMITTER: Sarda SP 

PROVIDER: S-EPMC10015585 | biostudies-literature | 2023 Jan-Dec

REPOSITORIES: biostudies-literature