The observational clinical registry (cohort design) of the European Reference Network on Rare Adult Solid Cancers: The protocol for the rare head and neck cancers.

ABSTRACT:

Introduction

Care for head and neck cancers is complex in particular for the rare ones. Knowledge is limited and histological heterogeneity adds complexity to the rarity. There is a wide consensus that to support clinical research on rare cancer, clinical registries should be developed within networks specializing in rare cancers. In the EU, a unique opportunity is provided by the European Reference Networks (ERN). The ERN EURACAN is dedicated to rare adults solid cancers, here we present the protocol of the EURACAN registry on rare head and neck cancers (ClinicalTrials.gov Identifier: NCT05483374).

Study design

Registry-based cohort study including only people with rare head and neck cancers.

Objectives

to help describe the natural history of rare head and neck cance

SUBMITTER: Trama A 

PROVIDER: S-EPMC10019606 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature