International development of a patient-centered core outcome set for assessing health-related quality of life in metastatic breast cancer patients.

ABSTRACT:

Purpose

For patients living with metastatic breast cancer (MBC), achieving best possible health-related quality of life, along with maximizing survival, is vital. Yet, we have no systemic way to determine if we achieve these goals. A Core Outcome Set (COS) that allows standardized measurement of outcomes important to patients, but also promotes discussing these outcomes during clinical encounters, is long overdue.

Methods

An international expert group (EG) of patient advocates, researchers, medical specialists, nurse specialists, and pharmaceutical industry representatives (n = 17) reviewed a list of relevant outcomes retrieved from the literature. A broader group (n = 141: patients/patient advocates (n = 45), health care professionals/researchers (n = 64), pharmaceutical in

SUBMITTER: de Ligt KM 

PROVIDER: S-EPMC10020292 | biostudies-literature | 2023 Apr

REPOSITORIES: biostudies-literature