Exploring the lived experiences of parents caring for infants with gastroschisis in Rwanda: The untold story.

ABSTRACT: Pediatric surgery is a crucial pillar of health equity but is often not prioritized in the global health agenda, especially in low-and middle-income countries. Gastroschisis (GS) is a type of structural congenital anomaly that can be treated through surgical interventions. In Rwanda, neonatal surgical care is only available in one hospital. The experience of parents of children born with gastroschisis has not been previously studied in Rwanda. The objective of this study was to explore the lived experiences of parents of children diagnosed with GS in Rwanda. A qualitative study using a semi-structured interview guide was conducted. Parents who had children with gastroschisis and were discharged alive from the hospital in Rwanda were interviewed by trained data collectors, from May to July

SUBMITTER: Kidane S 

PROVIDER: S-EPMC10021215 | biostudies-literature | 2022

REPOSITORIES: biostudies-literature